Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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@mskaren2009

I know this is old, but I am wfpb and my redundant colon didn't bother me at all(3-4 bowel movements a day) until February 2022. My wfpb doctor thinks my colon twisted and turned to a different position. I had excruciating pain for a solid 2 months. My high fiber diet has done nothing for me. The only time I'm good is if I consistently eat 2-3 servings of fruit a day. I've gained 30 lbs over the last almost 3 years. Part of the gain is from the colon issue and part of it is from eating more foods with oil.

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WFPB... Whole Food Plant Based.
Yes.
Redundant Colon.
I got off all the this to make me go, this to make me 🛑. I can't eat fiber. Fresh fruits & veggies was the hardest to give up. DX GERD initially, 25y's ago. Researching my chart 5y's ago DX Chronic gastritis, E.O.E, Gastroparesis; stomach's Slow
emptying. 2022 colonscope; redundant colon. EUS. EGD. CT's (xmany). X-rays. & there's no end for tests but i can hardly keep appts w Huge swollen stomach- i thought. There's no test for IBS. Symptoms. D 4y's & C past y. Acidic spit vs Bile spit? w D explosive, oily, immediately after food - bthrm. & C going once every 7 d. I had salmon n sweet taters T & W. on F& Sat, i see pink in poo balls in toilet. It's salmon 3 days digesting. Today stomach ( ctr rib cage) normal from Fast. Colon's painfully swollen, bloated. w 30g Boost & Gatorade Zero drinking all day 3rd day. Trying to reset biological clock & hopefully prepared for Intake & Elimination. GES Gastric Emptying Scan should be very successful tomorrow. Can't say couldn't complete test or Any food could be Something

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@dfloyd1133

No I decided against that surgery bc of age and nothing is 100%.

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Considering age @66yy, what i've endured w cholecystectomy, umbilical hernia repair, rectopexy-(anal prolapse), & 40 y ago hysterectomy- scar tissue growth- doc talked re removal of excess growth- Huh? PCP i have past year offered a tetanus shot, another Huh? Petty stuff when I'm in maternity clothes w distensions & a prolapse. I kid you not. So many tests & blood work & i agree 100%

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@mel1987

I was diagnosed in 2010 with tortuous colon which was discovered during a routine colonoscopy. I have had very few problems until the beginning of 2019 when I began developing severe muscle spasms in my lower left abdomen and lower left back. I cannot think any other reason why these spasms would occur other than a result from the tortuous colon. I have also had severe constipation which I cannot find relief for. Has anyone else had anything similar happen?

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Yes, I can say.I have had similar thing happen with me.
Stabbing pain when turning in bed on my left side.
Seem to coincide when I began to have gastro.Issues because of my twisted colon.
Constipation.
Is always a situation that you have to deal with all the time.
Just completed a colonoscop and it was a moderately torturous colon.
I wish that there was a way we could untwist the colons!
i'm going to look into it.

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Hi Jayne,
Best of luck. Stick with it and you can find just the right fit for you! I am so glad I didn't even consider surgery after finding out about my longer than usual colon! You can form fit the changes you need for just you. Be sure to be active too. Glad others have natural suggestions like kiwi and artichoke root and slippery elm, Maybe I will add them from time to time too.
Disclaimer: Only my experience going natural for chronic constipation and come to find out redundant colon. I have used organic, integrative, functional, holistic Naturopathic doctor's advice along with my MD’s since the early 1980's. There is science in alternatives too.
I work closely with my ND, he told me to study the Migrating Motor Complex and Osmotic Gradient and he bet that I would find something that worked for me. Goal: how to keep a longer than normal pipe consistently moist…. My ND also said because my condition was physical, attention would be needed from now on.
I tried laxatives and they are not consistent and have side effects like bloating, etc. All say for occasional use. They disrupt the system if taken continuously. Psyllium husks, MD's go to, made me worse. I liked response from a co-redundant colon person: “It’s physical” so regular constipation suggestions may not work. Don’t give up because it took me 4 months to feel I could depend on being regular. It is worth going natural.
Dec 2023 the doc had me do non sedated colonoscopy. He went through my colon as I watched on TV. I had had a baby years ago (natural and could stand pain) so figured I could stand it – it was no big deal. Most people in world don't get put out. Very interesting and it helped allow the scope to get through because I relaxed. No wonder I had been constipation on and off starting in my teens. I’m now in my early 70’s.
OptiMag and K2+ Potassium are great supps. I take them when I go to bed and once in the night. I include prunes/prune juice, winter squash, sweet potatoes, rhubarb etc in my diet. I eat cups of steamed vegetables each day. I grind 2T chia, 1 T sesame seeds and 2 T flax seeds, then soak in prune juice overnight. I add a T or two of carob now since it can help regularity. Take half in the morning and half at night or all in the morning. Throw sugar out along with processed and refined foods. Look up foods and drinks that constipate and give them up, at least as a test. Drink lot of water starting with a quart of hot water in the morning - boy scouts. I use warmed up diluted chicken broth at times too. It is soothing to my stomach. Coffee and Smooth Move are my back ups. I don't like coffee and never have drunk it much but it usually works for me in a pinch. Thankfully I only need coffee a few times a month.
Check out helpful research of biological processes that take place in our gut:
- Migrating Motor complex which is the electroactivity in the GI tract during meals and fasting
- Osmotic gradient. If too much water is pulled into the colon, diarrhea results. If not enough water is pulled into the colon constipation results. Balance of minerals is important. Magnesium, potassium and sodium brings water into the colon. I have found balancing these help prevent constipation. I have to watch my calcium supplement intake because it tends to encourage constipation. Calcium carbonate seems to be the most constipating. I depend on blood work from time to time to make sure my minerals are balanced. Oh and letting stress go is important too - I know how scary it can be. Golly it seems there is no hope for relief but it is worth looking at diet and trying lifestyle changes that can help. Good luck, @farmersmith

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Hi had a colonoscopy it was very painful bcz i have same like you redundant tortus colon with sigmoid loops...my symptoms are very painful gas all over stomach that including stomach skin discomfort..when seating long time and too much gas...also empty stomach more worse..

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@longcolin

Yes, I can say.I have had similar thing happen with me.
Stabbing pain when turning in bed on my left side.
Seem to coincide when I began to have gastro.Issues because of my twisted colon.
Constipation.
Is always a situation that you have to deal with all the time.
Just completed a colonoscop and it was a moderately torturous colon.
I wish that there was a way we could untwist the colons!
i'm going to look into it.

Jump to this post

Hi had a colonoscopy it was very painful bcz i have same like you redundant tortus colon with sigmoid loops...my symptoms are very painful gas all over stomach that including stomach skin discomfort..when seating long time and too much gas...also empty stomach more worse..🥲🥲🥲

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Great post Farmer Smith.
I apply a lot of what you do as well,
But im not brave enough to grind all the seeds up and eat them with prune juice.
Dry prunes bloats me but I will try the concoction w prune juice!
Thanks again

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@longcolin and sylhet1978,

@longcolin
Good luck with more natural things , hopefully you can get just the right combo and back ups for when regularity is not perfect. It is so worth it.

sylhet1978
So sorry to hear that the colonoscopy was so painful. For me, I measured my pain against a near fatal auto accident in 1972 and natural birth of our daughter in 1986. Plus I like to go natural as much as possible. Hope you can find relief with natural things shared on these posting?
Sometimes lifestyles and eating certain foods play a big part for us with redundant colons in our regularity. These need to be altered but there seems to be no magic key. Best of luck, it is so worth having daily Regularity!

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