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Anyone living with Essential Thrombocythemia with JAK2?

Blood Cancers & Disorders | Last Active: Jan 8 3:02pm | Replies (104)
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@colleenyoung

Welcome @lindamarie63. I hope you saw the helpful replies from several members living with ET with the JAK2 mutation. Here are some additional discussions you may find helpful:
- Essential Thrombocythemia: Looking for information and support https://connect.mayoclinic.org/discussion/essential-thrombocythemia-1/

- All ET discussions: https://connect.mayoclinic.org/group/blood-cancers-disorders/?search=Essential+Thrombocythemia+#discussion-listview
- JAK2 https://connect.mayoclinic.org/group/blood-cancers-disorders/?search=JAK2&index=discussions

Lindamarie, is this a new diagnosis for you? What treatment options have been suggested? How are you doing?

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Replies to "Welcome @lindamarie63. I hope you saw the helpful replies from several members living with ET with..."
lindamarie63 | @lindamarie63 | Jan 8 12:03pm

Its a fairly new diagnosis. I take 500 mg of HU twice a day. It has lowered the count from 1100 to 700.
I also am anemic , and have to get blood and iron transfusions.

I can simply prick my finger sometimes and it bleeds a lot.
Im td i most likely have a hidden GI bleed and thats why my hemoglobin drops so quickly.

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