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Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Blood Cancers & Disorders | Last Active: Dec 16 12:28pm | Replies (81)
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@colleenyoung

@pixiesusan @audreyl23 @sjjs @1dgrab @j68eis @thipley, just checking in. How are you doing?

This can be a busy time of year with family, gatherings and commitments. How does CCUS affect how you prepare for the holidays? Have you found activities that allow you to pace yourself?

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Replies to "@pixiesusan @audreyl23 @sjjs @1dgrab @j68eis @thipley, just checking in. How are you doing? This can be..."
j68eis | @j68eis | Dec 16 12:28pm

Thank you for reaching out, and checking on those of us that have CCUS.
I for one am doing fine. My last BMB didn't show the mutations that showed up in the 2023 BMB. My numbers are still low but continue to remain stable. My hematologist at the Mayo
clinic in Phoenix mentioned to me that "If the past portends the future that this is something I've probably always had." I go to my regular hematologist for monthly labs, and will be going for another BMB at the Mayo Clinic sometime in June or July. Just as precautionary measure to see
if things are still stable. I continue to wear a mask in overly crowded areas.and will definitely
wear one on our cruise In March/April. I find myself not worrying to much about something I
have no control over.
I wish others in this group a very Merry Christmas and a Healthy and Happy New Year.

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