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Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: Feb 26 8:41pm | Replies (1327)

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@parus

Well all of you people living in fibro land encouraging you to do your best and what is in your comfort zone. It may mean a fairly lonely existence, but certainly (speaking for myself) better than flares. I do not even ask for pain medication as where I am it is viewed as drug seeking. I stay with the same primary care person as too much changing around or any at all now is viewed as drug seeking. Take an OTC is what they recommend. No need as if it does not help why take it-even as prescribed. In the area I live in prescribing of opioids is rare. Depression and PTSD are in my chart for all to see-it is the first thing in my chart. How far does anyone trying to get help for pain get taken seriously I am told to talk to a therapist. I have a UTI and still trying to see the PCP. Still waiting on a cancellation. So yes, in a fibro flare. There are times when I go to bed and hope not to awaken to another day. As you can see I have and hoping to get some help for the UTI. I don't even mention fibro as bels and whistles go off in the doctor's head that spell out drug-seeker when I have not once asked for them. They are firing patients now for even asking. I do see a pain specialist for trigger point injections which help for a few days. Insurance will only pay for every 6 months even though they only last a week or so. I am allergic to steroids and get shots of a numbing agent that help the muscles relax. So yes, I am rather discouraged right now. 🙁

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Replies to "Well all of you people living in fibro land encouraging you to do your best and..."

Hi Parus, have you ever tried a doctor of Oriental Medicine? I see an MD with a Ph.D. and is an Anesthesiologist Dr. by profession! In all of my years of being like this, she has brought so much relief that I thought was never possible. Homeopathic! Well, some days I need extra help! She provides this and so much much more! The only drawback is that insurance companies DO NOT value these doctors nor their methods. Sad isn't it! Don't know where you are; but, let me know if you want some info to research. I went with an open mind and came all the better! Have referred many to her!! She is great!

@oh_suzie_q Insurance will not cover homeopathic. Thanks for your input.

nope, they don't recognize it as a "cure" for the condition. very sad! Sometimes insurance will pay for the office visit; but, not the treatment. I found it helps so much, I pay! Rids my pain for long periods of time with just a little help, as needed.

Sorry your down ,been there also ,when I have a UTI I just mention my symptoms that's all and so far the Dr. prescribes for me ,but the last couple of months my fibromyalgia has gotten worse ,going tomorrow to my rheumatologist .

Good Rumie best choice. Be careful. I stayed with my primary and he was dangerous to my illnes. My Ra got worse as it was not treated.

I have a real nice rheumatologist a nurse practitioner ,the Dr.told me good by but I'm glad Tina is very good says is open to info I find on research on internet and knows her business since I'm a retired nurse we talk the same lingo.haha

So believe in @oh_suzie_q love your post to parus. Have had good Oriental treatment and traditional PT. But can't afford any out of of pocket expenses anymore.

@virtuous69 Nor can I. And it is okay.

If it helps, why not try? It beats living in pain. I think we need to weigh our options. Hmmm pain vs. no pain. Its a no brainer for me. I can put away a little each month for proven methods that work. Other than drugs at all times. A combination is the key!