Microinvasive breast cancer and positive senitel lympyh node

Posted by jusme @jusme, Jul 6, 2018

I had bilateral mastectomy and removal of sentinal nodes due to dcis insitu however when pathology report came in they found another type of cancer ...microinvasive breast cancer with one of two sentinel nodes positive. Has anyone else had this diagnoses ? There's not much available on it. I have went for the body scan to assure it has not spread . Still anxiously awaiting results .

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I had two types of breast cancer according to my surgical pathology report. IDC and DCIS with microinvasion. I believe this is pretty common as I think the IDC comes from the DCIS. The tumor itself was very small, only 20 mm, which is slightly less than an inch. I had a lumpectomy and radiation, but refused chemo because no lymph nodes involved. My surgeon says I've had a charmed recovery, so I feel very blessed.

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@heathercantu

I was diagnosed with dcis in stiu with suspected microinvasion on June 18th. Waiting on genetic results before surgical plan. Did u have any pain in the lymph nodes?

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I was diagnosed left side DCIS stage zero, then bi-lateral mastectomy & lymphnode dysection found 1mm invasive, HER-2+, so off to chemo which started July 17th.

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@heathercantu

I was diagnosed with dcis in stiu with suspected microinvasion on June 18th. Waiting on genetic results before surgical plan. Did u have any pain in the lymph nodes?

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I'm sorry to hear of your diagnoses @mmcleod1.  May I ask who recommended chemo? My medical oncologist recommended chemo pill after radiation. They were not able to find the receptors of my microinvasive tumors . 

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@colleenyoung

Hi @jusme, any update on next steps? The type of breast cancer and treatment plan?

@graceak10 Did you decide to also do radiation in addition to chemo?

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The medical oncologist was unable to determine the receptor type of the microinvasive cancer therefore he is assuming it's the same type of cancer as dcis since it was in its background . Radiation oncologist is sending me to Vanderbilt for a 2nd opinion on radiation. He doesn't think I need it but I'm uncomfortable with that. So Monday i see 2 radiation oncologist at Vanderbilt and hope I have some answers and a treatment plan by midweek.

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@heathercantu

I was diagnosed with dcis in stiu with suspected microinvasion on June 18th. Waiting on genetic results before surgical plan. Did u have any pain in the lymph nodes?

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Hello! Welcome- @mmcleod1. Thank you for posting.

How are you feeling so far? and how long is treatment to last?

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@colleenyoung

Hi @jusme, any update on next steps? The type of breast cancer and treatment plan?

@graceak10 Did you decide to also do radiation in addition to chemo?

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good for you for advocating for yourself. I love this post. If you feel something isn't right or don't feel comfortable with the plan a recommends or you want a second opinion- by all means- do it. good job!

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10 years ago I had a nuclear grade 3 DCIS. Before knowing the grade, I opted for a mastectomy. I had two nodules on the lung (eventually deemed benign) and I didn't want to radiate that area unnecessarily. So for me, mastectomy seemed like the best option with a 2% chance of recurrence, compared to lumpectomy and radiation with a 13-15% chance of recurrence. It was a no brainer for me. My dr did a sentinel node biopsy. Found clusters of cancer cells. She then took out 4 or 5 surrounding nodes which were all negative. My report came back risk of micro-invasion. I still don't understand it. I asked my dr at that time and she said cancer cells could have been pushed in when dye was injected. I should go home and that I was fine. I took this to mean that they don't know if there is or isn't micro-invasion and maybe 10 years later I'll wake up with metastatic cancer? I just don't know what it means. I've gone on with my life and tell myself I don't have cancer. And honestly I've been taking care of my husband for years who had stage 4 cancer and my focus was him. But now that I'm 10 years out, any pain I get as I age, I think that's micro invasion. I really don't understand and how do they follow up with "risk of micro invasion". I'm vigilant with exams and mammos/ultra.

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