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Barrett’s esophagus

Digestive Health | Last Active: 4 days ago | Replies (493)

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I am sooo happy to find this forum. I am really sad about my diagnosis two weeks ago. My understanding is that while erosive esophagitis can be reversed — Barrett’s cannot. I am extra fearful because I witnessed my younger brother die of stomach cancer in his mid 30s (non drinker, non smoker, healthy and fit while eating organic and having a six pack abs etc — when he complained of stomach pain docs did not scope because of his age and he was treated with protonix for what they aaaimed was an ulcer. A few months later after liver pain he was diagnosed with stomach cancer and he died 3 1/2 months later).

Sooo … I’ll always have post traumatic stress from my reflux lead me to get scoped (although the docs don’t think this is related to my family history). I was recommended to have another endoscopy in 3-6 months for more extensive biopsies . So far it’s non dysplasia Barrett’s.

I’m scared but have gone full speed revision of my diet , habits, sleep at incline …

I lost my job two weeks ago (but start a new one soon luckily). I’ve been spending the last two weeks scouring the net and YouTube videos and have found a TON of great info. But I love seeing other people that have experience living with Barrett’s.

I am scared

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Replies to "I am sooo happy to find this forum. I am really sad about my diagnosis two..."

I was diagnosed with Barretts a few years ago... The dr. prescribed a PPI which I took for a few months. But then when I was researching the drug and I have Osteoporosis in my hip - I mentioned this to my Dr. and she switched me to Famotidine AKA Pepcid AC. So I take that maybe every other night.. I have Silent Reflux, so I have never really felt like I had heartburn itself.. My throat was bothering me and I went to an ENT.. He said it looked like Acid Reflux. I have changed my diet as well and read Dr. Koufmans' books. I just pray I could get rid of the Barretts... I was told it will always be there.. Luckily is was without Dysplasia's so I am hopeful! Good luck to all with this..

WHEN DO YOU/DOCTOR decide to do the ablasian? I’ve heard a few people on here mention that they have done this procedure and I’m curious of why/when that is the recommendation.

Thank you sooo much for all of your feedback and sharing , everyone !☺️☺️☺️

The issue with coffee is that the caffeine causes the sphincter (LES) to loosen, thereby allowing the stomach acid to rise into the esophagus. Similarly, chocolate contains caffeine and should not be eaten 🙁

I have been diagnosed with Barrett's 3 years ago and I'm coming up to my 3-yr gastroscopy next week. I have used PPI's only for short periods as I was concerned about side effects and they did not seem to help much with the throat clearing due to mucus build-up. I have tilted my bed so that the head-end is 6" higher than the foot end. I have also used magnesium after meals that gave me issues. Just recently everything seems to have balanced very well and I am symptom free without PPI's. I start the day with an enzyme supplement and this seems to have helped a lot. 8 am Breakfast is 2 slices of sourdough bread with a rich layer of guacamole on top and a large cup of decaf coffee. In Canada we have Tim Horton's decaf coffee which I have the best results with. 11 am I take Gut FX, mixed with filtered water. Lunch is rolled oats with yoghurt or kefir and a mid-afternoon snack of mixed nuts (not pre-packaged but I mix it myself). Dinner is s small meal of home cooked vegetables and some chicken. Sometimes eat smoked Pacific salmon also. I will soon find out if the measures I have takes were sufficient. I'm not without worry about all of this.

I was diagnosed with gastritis w hyperplasia, reflux acid and bile, and Barrett’s 5 months ago. I had the esophagus scope after an emergency Dr recommended the scope. I was looking for answers for my burning mouth, tongue, and tooth and finally after almost 4 years found the answer to my hot burning….reflux! My reflux was silent. I did not know I was having reflux. After diagnosis I was prescribed 40 mg ppi twice daily, sucralfate 10ml before meals and at bedtime and baclofen 5 mg 4 times daily. Have tried 3 different pppi’s , first pantapazole ( ankles and lower leg swelling and pain) , Prilosec started a nuisance cough and nasal drainage for 6 weeks so took steroid dose pack to relief cough. It was like I replaced burning mouth for a nuisance cough! Now I take Nexium OTC two 20mg twice daily. It took about 30 days of treatment for my mouth burning to start improving which was not fast! My biopsy showed small squamocolumnar mucosa with small focus of intestinal metaplasia. I told the specialist something like I realize it’s a small area. He told me it was serious, it was precancer! I too am doing everything that is recommended for reflux regarding elevation of upper body, eating as recommended as to what I eat, size of meals, and when I eat. I only drink bottled water. I also take vitamin D3 and Premier Research Labs Phyto methylate which contains activated B vitamins, folate(5-MTHF) and choline which is suppose to help with Barrett’s improvement. The baclofen I take is suppose to help with the spinster to have fewer reflux events. The pppi’s don’t do anything to help with bile reflux. Pppi’s help acid reflux by stopping the acid pumps in the stomach . The sucralfate liquid coats my stomach and esophagus to protect against bile acid damage to esophagus and stomach. I read everything I can find. I recently reread my esophagus and stomach biopsy report which described the stomach and Barrett’s and listed bile reflux as a cause of gastritis and the Barrett’s so just learning about the bile reflux after 4 months of treatment for acid reflux but thankfully was taking the sucralfate which does protect my stomach and esophagus against bile damage. My family Dr told me Barrett’s can’t be cured but can be improved so I am trying. My specialist retired in Dec. I have an appointment with new specialist In a week. Seems the actual specialist in my area stay busy doing procedures and have their PA deal with patients. I would rather be talking to the doctor specialist about treatments. I will be asking about the new treatments for Barrett’s. I did read where the esophagus scope should be performed 6 months after treatment started to actually see the stomach and Barrett’s tissues to see if improving with treatment. Prayers for all!

I was diagnosed with Barrett's as well...so i understand the scary part. I wasnt expecting that I guess? Ive had horrible reflux/gerd for years and been on many mediations for it..They work for a time than they dont. Does anyone else throw up with this? That has been happening the last several years for me but couldnt figure out what was going on. Came to my gastro here at home and she diagnosed barretts. we changed meds and hopefully that will help. good luck with yours and I hope that you feel better soon...Kim

I have no meta plasma with my newly diagnosed reflux and Barrett’s.

I was diagnosed with Barrett’s several years ago. After a few years I had 3 RFA’s (Radio Frequency Ablation) done. They basically burn and scrape the brown tissue away at your esophagus and stomach connection then new pink healthy tissue grows back. I’m not sure about it being a cure for Barrett’s but so far so good years after this was done. Gerd they say causes the burned “ brown” tissue I was told. Which can maybe become cancerous. I take 40mg of Omeprazole every morning which helps with the acid reflux. Good luck and I hope you make out okay 👍 oh and I must say whenever I went to bed right after eating dinner or on a full stomach the “gerd” was the worst!!!! Wait AA couple hours then go to bed.

The stomach acid from Gerd had burned the tissue where my esophagus connects to the stomach and turned it brown. I was told that healthy tissue should be pink. When they do this procedure they also provide pictures similar to a regular scope, dysplasia sounds familiar.