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Adhesive Arachnoiditis & the Effects on Walking
Spine Health | Last Active: 4 days ago | Replies (63)Comment receiving replies
Amen. Wish and pray for more Dr's to study this and research it bc it's a disease that makes you feel crazy describing it and also living it. There aren't many who have even heard of it. My primary was the 1 who read this and went you are my 2nd case. She said she had studied this and now understands more about why I feel the way I do.
I was shocked until I went home and googled this then I cried but I was so grateful for a diagnosis FINALLY. Archie speaking w you makes me feel good bc you can relate. Thank you so much. Sherry.
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I have looked for treating doctors & even tried to give PCP information, but little to know interest. One PCP said she would not even give me Medrol dose pac, for fear that i might get Cushing's disease. She basically left me high & dry, had to go to ER & wait 6 hours to get seen. I've had ER docs, tell me i''m crazy, more or less. I have tried to be my own advocate, repeatedly. This is as frustrating as the condition itself. Think many doctors are tired of practicing medicine & there is big shortage of specialists in Phoenix valley & snowbirds make it worse. I have had 5 PCP's quit in last 2 years. Having an accurate diagnosis is important, but the adventure starts after that