What helps spinal stenosis besides surgery?

Posted by sakota9 (Joan) @sakota, Jul 17, 2020

I also suffer from bursitus in my hips so I go in for infections. The shots help both my hips and my back. Today, thought I would look for things on the internet and then discuss with my dr. I came across an article for a neuromd Its a device you wear on your back and helps with the pain. Its been FDA tested and approved. Has anyone checked this out. I don't know if insurance covers it or not ...... I am getting tired of the injections and those really are just a temporary solution. I'm 76 and don't think I want to go thru surgery and my dr said that doesn't really help. So if anyone has one of these things or know about them, would appreciate your input. Besides the back am also dealing with copd and lung cancer........Life is like a box of cherries......I just keep getting the sour ones......... Hope you all are doing ok......andhave God, family and friends as your everyday support...........

Interested in more discussions like this? Go to the Spine Health Support Group.

@readybee

Am suffering with spinal stenosis my dr.recomend back surgery but later found that I have a very low pulse rate at the moment the surgery is on hold am 69 should I still have surgery almost close to 70yrs any advise please

Jump to this post

@readybee Welcome to Connect. While no one here can give you medical advice, have you consulted a Cardiologist about your slow heart rate? That may be a step to resolve the situation so you can be a candidate for needed surgery.

REPLY

I find that bending over and stretching, making sure my lower spine gets a lot of movement helps the most. I have had two injections which work but only for a few months. Since my last one, with doing these stretches, I
eliminate at least 85% of my pain.

Good luck Joan, will say a prayer for you.

REPLY
@wisco50

I actually did try the NeuroMD and didn’t find it very helpful. I had several “technical” problems with it. Sold it online to someone but of course lost $$ on it.

I had surgery in 2011 which helped but then developed more stenosis problems at another level. Didn’t want another fusion which was offered to me. I am now 70.

I tried injections etc but it got worse to point I was limping and occ used a cane. I then tried a spinal cord stimulator trial which helped and so had a permanent one put in this January. It has definitely helped me and I am glad I did it. Not everyone seems helped by them. It was an “easy” surgery, went home within hours. The hardest part was all the movement restrictions afterwards for several months. I did it in winter so I could be outside in my yard and garden this summer. I live alone and it made me plan ahead and get creative, but I managed!

Always get at least two opinions! Why does your doctor say surgery won’t help?

Jump to this post

All this is confusing. I have severe scoliosis, spondylothesis and a 30 or 35% scoliosis curve. Spine surgeon wants to do L5-S1, and maybe a fusion above that. The potential for more burden above those fusions, leading to more surgery is concerning.

I’m 72. I’m told this general age range is when these surgeries happen. I’m very active, though can’t walk over two miles now, and certainly no longer a runner. Sometimes the pain is more than other times.

Going for second opinion at UCSF, and wonder if I shouldn’t check out Mayo Clinic in Phoenix. Also a third opinion with a neurosurgeon from Sutter Health/CPMC.

As posted before, was going to do surgery end of this year but then doc wants my bones stronger, hip osteoporsis. Spine at a T score of zero. I know I’ve posted on this and gotten great support for fusion, then see other posts where it’s not so great. Hmm. I’ll keep my weight lifting up, my pelaton, walking what I can, and ordered the McGill book. Glad I am retired!

REPLY
@willow5

Did you the the classes or find some good results from the Gokhale book/videos?
Thank you!

Jump to this post

I started with the book which seemed to make sense and then did a one day group class.

REPLY

Hello. This is my first posting and I apologize in advance if I'm a little long winded. I'm just really terrified and would love some consult and/or experienced assistance. I have been dealing with a lot of compounding back issues. I have lumbar stenosis, cervical stenosis. In the last couple of years I have had physical therapy, injections. A surgeon I was referred to stated that I needed the surgery. I can't remember how to spell this. It consists of opening up my back and removing disks and fusing other parts together. I'm sorry I botched this whole thing up. Anyways, he informed me that as long as we delay the surgery my back will continue to affect the nerves and there's no way of repairing the already damaged nerves. I was also told that I couldn't have the surgery until I resolve my dental issues he wouldn't be able to do the surgery. Long story. I've been in a holding pattern for 2 years now. I can't go to a dentist. I won't go to a dentist. I'm a real child when it comes to this. Any ways, I'm having an MRI on the 20th of Dec. to update. I'm alone I have lost my dad and my mom to heart disease. Everyone else has gone. Anyone, who has read this so far are very patient. I appreciate that. I'm also a diabetic, arthritic. I have autoimmune disease and thyroid. I only mention these incase it made a difference. What I really need help with is the nightime pain in my arms at night that wakes me out of a sound sleep to sitting on the side of my bed crying and pacing the floor for half an hour till it subsides a little. Both of my feet are numb up to my shins. My hands are both swollen and hurting from the arthritis. Ok. I'm done. If anyone has any thoughts? I'm open. and I really am sorry to go on. This really the first time I've put all this out there. I read all the postings on your forum. It makes me feel a little less alone to know others are coping and I can too. Thank you!

REPLY
@djspiker

Hello. This is my first posting and I apologize in advance if I'm a little long winded. I'm just really terrified and would love some consult and/or experienced assistance. I have been dealing with a lot of compounding back issues. I have lumbar stenosis, cervical stenosis. In the last couple of years I have had physical therapy, injections. A surgeon I was referred to stated that I needed the surgery. I can't remember how to spell this. It consists of opening up my back and removing disks and fusing other parts together. I'm sorry I botched this whole thing up. Anyways, he informed me that as long as we delay the surgery my back will continue to affect the nerves and there's no way of repairing the already damaged nerves. I was also told that I couldn't have the surgery until I resolve my dental issues he wouldn't be able to do the surgery. Long story. I've been in a holding pattern for 2 years now. I can't go to a dentist. I won't go to a dentist. I'm a real child when it comes to this. Any ways, I'm having an MRI on the 20th of Dec. to update. I'm alone I have lost my dad and my mom to heart disease. Everyone else has gone. Anyone, who has read this so far are very patient. I appreciate that. I'm also a diabetic, arthritic. I have autoimmune disease and thyroid. I only mention these incase it made a difference. What I really need help with is the nightime pain in my arms at night that wakes me out of a sound sleep to sitting on the side of my bed crying and pacing the floor for half an hour till it subsides a little. Both of my feet are numb up to my shins. My hands are both swollen and hurting from the arthritis. Ok. I'm done. If anyone has any thoughts? I'm open. and I really am sorry to go on. This really the first time I've put all this out there. I read all the postings on your forum. It makes me feel a little less alone to know others are coping and I can too. Thank you!

Jump to this post

Hello. May I ask if you have been checked for Hoshimotos ( not sure of spelling) it a thyroid issue.
As for your hands and arms try lifting them w pillows also sleeping w pillow between your shoulders on your sides . I have about 7 pillows in my bed to help to get into a position to sleep sometimes takes numerous positioning but it does help. Also try movements in arms and hands as much as you possible can before going to sleep. I also use a hot rub on areas it try to relieve pain. Sometimes even vicks the menthol scent helps due to scent making brain feel sensation of relief. Scent makes my sinuses open for better breathing which helps prolong sleep.
These are just things I use , I pray this helps.

REPLY
@gldburg92jeep

Hello. May I ask if you have been checked for Hoshimotos ( not sure of spelling) it a thyroid issue.
As for your hands and arms try lifting them w pillows also sleeping w pillow between your shoulders on your sides . I have about 7 pillows in my bed to help to get into a position to sleep sometimes takes numerous positioning but it does help. Also try movements in arms and hands as much as you possible can before going to sleep. I also use a hot rub on areas it try to relieve pain. Sometimes even vicks the menthol scent helps due to scent making brain feel sensation of relief. Scent makes my sinuses open for better breathing which helps prolong sleep.
These are just things I use , I pray this helps.

Jump to this post

Thank you so much! I'm about at the end of my rope with this pain thing in my arms-all of a sudden I wake up and both my arms are throbbing and feels like theres no blood flow. Just pain. I have spent this last two weeks sitting on the couch rubbing my arms and crying. I currently have Gabapentin and two night Tylenol pm. But I also take metformin, Simvastatin, Glipizide and a magnesium supplement. But thats just at night time. I just read something yesterday that said the Cervical stenosis COULD cause this arm pain. Never occurred to me that it wasn't the Lumbar stenosis. Now maybe I can get some sleeping position with the pillows etc. to take some of the pressure off my neck and arm pain. Thank you for the pillow advice.

REPLY
@djspiker

Hello. This is my first posting and I apologize in advance if I'm a little long winded. I'm just really terrified and would love some consult and/or experienced assistance. I have been dealing with a lot of compounding back issues. I have lumbar stenosis, cervical stenosis. In the last couple of years I have had physical therapy, injections. A surgeon I was referred to stated that I needed the surgery. I can't remember how to spell this. It consists of opening up my back and removing disks and fusing other parts together. I'm sorry I botched this whole thing up. Anyways, he informed me that as long as we delay the surgery my back will continue to affect the nerves and there's no way of repairing the already damaged nerves. I was also told that I couldn't have the surgery until I resolve my dental issues he wouldn't be able to do the surgery. Long story. I've been in a holding pattern for 2 years now. I can't go to a dentist. I won't go to a dentist. I'm a real child when it comes to this. Any ways, I'm having an MRI on the 20th of Dec. to update. I'm alone I have lost my dad and my mom to heart disease. Everyone else has gone. Anyone, who has read this so far are very patient. I appreciate that. I'm also a diabetic, arthritic. I have autoimmune disease and thyroid. I only mention these incase it made a difference. What I really need help with is the nightime pain in my arms at night that wakes me out of a sound sleep to sitting on the side of my bed crying and pacing the floor for half an hour till it subsides a little. Both of my feet are numb up to my shins. My hands are both swollen and hurting from the arthritis. Ok. I'm done. If anyone has any thoughts? I'm open. and I really am sorry to go on. This really the first time I've put all this out there. I read all the postings on your forum. It makes me feel a little less alone to know others are coping and I can too. Thank you!

Jump to this post

@djspiker Welcome to Connect. I understand where you are coming from as I have shared the same fears. I want to tell you that if you work for it, you can overcome those fears that are holding you back. I used to be terrified of the dentist, and as a child, I broke my front teeth which started a pattern of dental work that over the years failed and had to be redone, and with some dentists lacking empathy, I was so fearful that I would pass out. That fear is what I had to work on before I could go through spine surgery. I knew that if I didn't have spine surgery, I would loose my ability to work as an artist. It was already happening as my arms became weak and lost coordination. How could I give up what I loved doing the most (my artwork) and let a spine condition cause increasing disability? I saw my parents in wheelchairs and was a caregiver to them, and I knew I did not want a future like that. I was lucky because I had a choice. The choice was not difficult because I did that for love to save my ability to record the beauty in the world that I see. It was just overcoming the fear of the unknown and pain, and I devised a lot of ways to work on that.

I also lost my dad to end stage heart disease, and it was right after his passing that I got a call from Mayo with an appointment for a consultation. Even though I was afraid, I had to advocate for myself because I had a situation that surgeons misunderstood and didn't want to touch. I had spinal cord compression in my neck that caused pain all over my body. That is what scared them because they thought that fixing the compression wouldn't solve all the pain. I knew they were wrong because they didn't listen to the clues I was giving them in how I could reproduce or change where the pain went. 5 surgeons turned me down, and with each of them, I had to face the real possibility of surgery when I met them, and afterward when they were not interested, I asked myself, well why was I afraid of that? I had to remember it was my choice, and no one was forcing me to do anything. The surgeons are scared too because they don't want a failed surgery or bad outcome that could ruin their reputation. It was after I found medical literature with cases similar to mine, that I approached a surgeon at Mayo. He helped me with his expertise, and above all that, he was kind and empathetic which I hadn't experienced before with any of the other surgeons who examined me.

I know that fear has many levels to it. Lets start with some small steps. If you will look at this discussion and watch the video at the beginning, you'll learn about how I designed my own therapy to get myself through the fear of the surgery that I needed. I can honestly tell you, it was one of the best things I have ever done. I never expected to get past my fear of medical trauma, but I did and it changed me for the better. Fear doesn't prevent me from seeking help or advocating for myself and others. That's why I'm here as a mentor because these journeys are very difficult to navigate.

I'm glad to meet you, @djspiker and you are not alone. The video is a podcast where I was interviewed in a show called "Your Positive Imprint".

"How Can I Defeat my Anxiety about Medical Tests and Surgery?"
https://connect.mayoclinic.org/discussion/how-can-i-defeat-my-anxiety-about-medical-tests-and-surgery/

REPLY
@djspiker

Thank you so much! I'm about at the end of my rope with this pain thing in my arms-all of a sudden I wake up and both my arms are throbbing and feels like theres no blood flow. Just pain. I have spent this last two weeks sitting on the couch rubbing my arms and crying. I currently have Gabapentin and two night Tylenol pm. But I also take metformin, Simvastatin, Glipizide and a magnesium supplement. But thats just at night time. I just read something yesterday that said the Cervical stenosis COULD cause this arm pain. Never occurred to me that it wasn't the Lumbar stenosis. Now maybe I can get some sleeping position with the pillows etc. to take some of the pressure off my neck and arm pain. Thank you for the pillow advice.

Jump to this post

Your very welcome. If you ever need to chat just let me know. I will give the best advice from my own experience, I pray it helps. Those icy rubs made me hurt worse. Sherry

REPLY
@jenniferhunter

@djspiker Welcome to Connect. I understand where you are coming from as I have shared the same fears. I want to tell you that if you work for it, you can overcome those fears that are holding you back. I used to be terrified of the dentist, and as a child, I broke my front teeth which started a pattern of dental work that over the years failed and had to be redone, and with some dentists lacking empathy, I was so fearful that I would pass out. That fear is what I had to work on before I could go through spine surgery. I knew that if I didn't have spine surgery, I would loose my ability to work as an artist. It was already happening as my arms became weak and lost coordination. How could I give up what I loved doing the most (my artwork) and let a spine condition cause increasing disability? I saw my parents in wheelchairs and was a caregiver to them, and I knew I did not want a future like that. I was lucky because I had a choice. The choice was not difficult because I did that for love to save my ability to record the beauty in the world that I see. It was just overcoming the fear of the unknown and pain, and I devised a lot of ways to work on that.

I also lost my dad to end stage heart disease, and it was right after his passing that I got a call from Mayo with an appointment for a consultation. Even though I was afraid, I had to advocate for myself because I had a situation that surgeons misunderstood and didn't want to touch. I had spinal cord compression in my neck that caused pain all over my body. That is what scared them because they thought that fixing the compression wouldn't solve all the pain. I knew they were wrong because they didn't listen to the clues I was giving them in how I could reproduce or change where the pain went. 5 surgeons turned me down, and with each of them, I had to face the real possibility of surgery when I met them, and afterward when they were not interested, I asked myself, well why was I afraid of that? I had to remember it was my choice, and no one was forcing me to do anything. The surgeons are scared too because they don't want a failed surgery or bad outcome that could ruin their reputation. It was after I found medical literature with cases similar to mine, that I approached a surgeon at Mayo. He helped me with his expertise, and above all that, he was kind and empathetic which I hadn't experienced before with any of the other surgeons who examined me.

I know that fear has many levels to it. Lets start with some small steps. If you will look at this discussion and watch the video at the beginning, you'll learn about how I designed my own therapy to get myself through the fear of the surgery that I needed. I can honestly tell you, it was one of the best things I have ever done. I never expected to get past my fear of medical trauma, but I did and it changed me for the better. Fear doesn't prevent me from seeking help or advocating for myself and others. That's why I'm here as a mentor because these journeys are very difficult to navigate.

I'm glad to meet you, @djspiker and you are not alone. The video is a podcast where I was interviewed in a show called "Your Positive Imprint".

"How Can I Defeat my Anxiety about Medical Tests and Surgery?"
https://connect.mayoclinic.org/discussion/how-can-i-defeat-my-anxiety-about-medical-tests-and-surgery/

Jump to this post

Also there are oral surgeons who can help w dental issues and give you comfort. I found 1 who scattered to cowards. And I never felt anything and made the procedure completely painless.

REPLY
Please sign in or register to post a reply.