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Fibromyalgia pain: Let's connect
Fibromyalgia | Last Active: Oct 31 9:08am | Replies (1334)Comment receiving replies
Hi @parus and @oregongirl I was just going to post a question and saw your posts. It is nice to belong somewhere, even though this is not what any of us wanted but I hear you. Also the brain fog. I have that a lot as well. I think it is also part of my Chronic Fatigue. My mom had dementia and my two children and I cared for her and she lived with us for awhile and she passed from a stroke. She still knew us and all was not that bad yet, but my kids saw it and it was heartbreaking. I am afraid sometimes, is it hereditary, am I getting it??? I don't want my kids thinking it. They say sometimes omg mom your just like grandma joking, but .....I know it is "brain fog". I am exhausted all the time. Well this is what I was going to post so if anyone can help me that would be great.
Is anyone taking Savella for fibromyalgia? I heard that worked well with fatigue. Today is the first day I am taking it. I am weaning off the Cymbalta. I have been on Cymbalta for years and I think my body is immune to it now. I am extremely tired and achy. I have other issues. I have Chronic Fatigue, that is why I started the Cymbalta. I was diagnosed about 23 years ago. I had my first child and had to do everything, got sick, mono, Epstein bar then had to quit my job. Went to university where they were doing research on CFS which was great because they tested me for everything possible and free, but wasn’t getting help. Did a few trial meds but didn’t know if placebo…..so mom said no more and got a dr. and Cymbalta was key. I got better, it went into ‘remission’ I was able to even have a second child. Wasn’t working though, but a few years later returned to work. Then out of the blue diagnosed with MALS, my SMA and celiac arteries were narrowed from being encased by diaphragm fibers, blah blah, basicly it was smushing the arteries. Well major surgery, hospital for 7 days, on disability now. Can’t recoup….the CFS back. I did also have major family stresses during this time which did not help at all.
So question is anyone taking SAVELLA and then the dosage is one in morning and one at night. I thought that odd since it is suppose to help keep you awake. Can anyone tell me anything about that? I will ask my dr as well but sometimes better to hear from people actually using it.
Thank you and good luck to everyone suffering with fatigue, it makes everything magnified even worse I think.
Replies to "Hi @parus and @oregongirl I was just going to post a question and saw your posts...."
Hi!
I was diagnosed with TMJ first, over 30 years ago. I had a great doc whose wife was a dentist. He read about TMJ in her journal and told me about it. Soon after, I was diagnosed with Fibro (several times). It is not unusual to have both and as you know, Fibro is diagnosed by a process of elimination. I am very well aware of brain fog. My hubby and daughter always comments on it.
The reason why people with fibro have the aches and the brain fog has to do with us not getting into the deep, restorative sleep. When I was diagnosed with Fibro, the doc wanted me to go on anti-depressants (low dose), but I didn't want to. My Dad had an issue with pills. Well, about 20 years ago I was desperate and the doc put me on amitriptalyn (spelling??), a very low dose that cannot be used for depression. I started to exercise by walking and lost weight. Within a month I was pain free!! I stayed that way from then on. I have other issues now but not active Fibro. I am only bothered by it if someone presses the wrong spot.
Something to help me get into REM sleep and exercise was the answer. It wasn't easy. At the beginning, my husband had to pull me along. Then, I started to walk on my own. I added the tread mill and weights.
Good luck!
Hope this helps!
Ronnie
So glad you posted this as fibro has so many other dis-ese with it.No wonder people have such a hard time figuring out pain meds
@jimhd Brain fog? I stumble around as though inebriated. It is not funny. Yet I laugh at myself. May as well. The medications designed to help do not as I have stated at different times. Savella resulted in Serotonin Syndrome. I had never heard of such. I was semi comatose for 3 wks waiting to see a doctor. Fatigue is so discouraging. I tell myself I am not tired. This self talk is not effective. When I see the pain specialist I am going to ask about chronic fatigue syndrome. Why not add something else to the mix? I have been reduced to syndromes, chronic conditions and disorders. Nothing at all encouraging in my charts. I am 10 lbs overweight and this is where the focus is which is far better than the 100 lbs I gained on Geodon. A misdiagnosis of Schizoprenia. Took renal failure to escape that GP. Prescribed Buspar incorrectly. I was having an allergic reaction and was told to give my body time to adapt. I have PTSD!!!
Okay feel BP rising. Think happy thoughts. Stress is an enemy for sure combined with pain. Spent my day painting a Siamese Fighting fish-sort of. Mostly sat and stared at it wondering why I would be painting this subject. Should have placed a Samarisword in it's mouth. Started out a watercolor and ended up a mixed media. I wonder why??? The last time I added media here on Mayo it came out horizontal when it was saved vertical. Can be viewed whilst lying in bed I suppose. Mayhap will make fish my profile picture. Have not changed this for a while. Nothing like messing with those of us living in fibro fog which feels like treading in pea soup.
Okay, enough of my stupidity. Think I will skip the proofreading as I feel adventurous. Hope this is in English. If not I doubt it can be translated.
At least I am not alone in fibro fog. Ball and chain on each ankle and around my neck. Sounds like I have company. Be encouraged everyone.
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I have symptoms today of achy muscles all over ,fatigue Is also lie to know about Savella?