1. < Fibromyalgia

Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

LynneB | @lynneb2110 | Jan 31, 2018
In reply to @sandytoes14 "I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions...." + (show)
@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can't think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don't know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

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Have any of you ever had horrendous heat intolerance? It has been so bad for about 6 years now. I’d sweat until my hair was dripping, face bright red. It wasn’t hormonal, we tried to fix it with store-bought hormones but no luck. I’m now also having terrible problems with cold hands and feet. Even when I’m hot.

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Texas Freedom | @oregongirl | Jan 31, 2018
In reply to @parus "All I know to do is keep trudging on. Some days are better than others. Thankful..." + (show)
@parus

All I know to do is keep trudging on. Some days are better than others. Thankful I can still do some art work. Joined some others for pizza Wednesday evening. I had a good time and ate some pizza which resulted in a flare with pain because anything in the Nightshade family does this. Each day I feel a little better. Missing out on things and not having any kind of social life has been difficult. Still good to see some people I had not seen in a long time. The neuropathy is very bad. It will improve with time. Having fibro and other problems can make for a lonely existence. Went to the grocery in search of smiling faces. I found some 🙂

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I know my dr would not treat something that is not real.

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Texas Freedom | @oregongirl | Jan 31, 2018
In reply to @sandytoes14 "I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions...." + (show)
@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can't think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don't know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

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Yes, I can heat up instantly. Middle of the night, or shopping just anytime. I am 75, it is not hormonal. It is RA

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Texas Freedom | @oregongirl | Jan 31, 2018
In reply to @oregongirl "Parus, I have RA and I was also diagnosed with Fibro. I am presently see my..." + (show)
@oregongirl

Parus, I have RA and I was also diagnosed with Fibro. I am presently see my doctors at the University of Texas Medical
center My doctor said I do not have Fibro I never thought to ask her - how do you know that? What is it they test to show that you have Fibro. I thought my RA had calmed down after 7 weeks of Methotrexate. But, I was SO Sick. I could not even eat. Everything came up. Even Liquid. So now I am on the Shots once a week. I start my Infusions next week. I am nervous about that Never having done the Infusions andI don't know what to expect. I was feeling so good and thought I had gotten the med into my body and then WALLA, pain came back. Today I have a headache. I feel so guilty as I cannot even clean the house. I usually do a bit here and there for about 15 minutes. I guess I should be thankful. I am sure there are many RA patients who cannot get up at all. Parus, I guess this is our life as long as we live.

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Lynne, There is a different paint with Firbro. I was told by a Dr in San Diego that I had Fibro. Does Fibro go away? Anywhere your question on the pain.
and RA. Both my legs ache and my arms are both sore,,,,,that is RA. I pray all this med they are putting in me will end the leg pain. Yes, my doctor in Oregon gave me Celebrex. I believe it is also used for pain. I might be wrong. I would like to stop some of the meds I take. I am going to work on them tomorrow and ask my doctor if I can quit some of these pills.

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schnauzerkid | @schnauzerkid | Feb 1, 2018
In reply to @sandytoes14 "I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions...." + (show)
@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can't think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don't know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

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You are not alone. I have dealt with fibromyalgia-symptoms most of my life, 77 yrs old.

REPLY
lioness | @lioness | Feb 1, 2018
In reply to @oregongirl "Parus, I have RA and I was also diagnosed with Fibro. I am presently see my..." + (show)
@oregongirl

Parus, I have RA and I was also diagnosed with Fibro. I am presently see my doctors at the University of Texas Medical
center My doctor said I do not have Fibro I never thought to ask her - how do you know that? What is it they test to show that you have Fibro. I thought my RA had calmed down after 7 weeks of Methotrexate. But, I was SO Sick. I could not even eat. Everything came up. Even Liquid. So now I am on the Shots once a week. I start my Infusions next week. I am nervous about that Never having done the Infusions andI don't know what to expect. I was feeling so good and thought I had gotten the med into my body and then WALLA, pain came back. Today I have a headache. I feel so guilty as I cannot even clean the house. I usually do a bit here and there for about 15 minutes. I guess I should be thankful. I am sure there are many RA patients who cannot get up at all. Parus, I guess this is our life as long as we live.

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I was in A clinical study with Celebrex related to the effects on heart It is a pain pill for osteoarthritis It did help with pain but I couldn't take it ,it you have a sensitive stomach it gave me pain in stomach and I had to stop it.But I my heart was not affected and my by pass surgery was in 1996.As far as fibro as far as I know there is no known cause ,that's why there is no known cure.
The Dr,s and research have come up with these but nothing concrete yet

REPLY
lioness | @lioness | Feb 1, 2018
In reply to @oregongirl "Parus, I have RA and I was also diagnosed with Fibro. I am presently see my..." + (show)
@oregongirl

Parus, I have RA and I was also diagnosed with Fibro. I am presently see my doctors at the University of Texas Medical
center My doctor said I do not have Fibro I never thought to ask her - how do you know that? What is it they test to show that you have Fibro. I thought my RA had calmed down after 7 weeks of Methotrexate. But, I was SO Sick. I could not even eat. Everything came up. Even Liquid. So now I am on the Shots once a week. I start my Infusions next week. I am nervous about that Never having done the Infusions andI don't know what to expect. I was feeling so good and thought I had gotten the med into my body and then WALLA, pain came back. Today I have a headache. I feel so guilty as I cannot even clean the house. I usually do a bit here and there for about 15 minutes. I guess I should be thankful. I am sure there are many RA patients who cannot get up at all. Parus, I guess this is our life as long as we live.

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Hi oregongirl yes , for fibro is different from R.A.this affects your joints ,fibro is in you muscle ,fibers,tissues not your bones,as RA and O.A Celebrex is pain pill for arthritis but combined maybe with other meds it will help fibro.I dont know about fambri? but I did Tramadl @Aleve .

REPLY
Texas Freedom | @oregongirl | Feb 1, 2018
In reply to @oregongirl "I know as my legs can only take so much. My kids are on me constantly..." + (show)
@oregongirl

I know as my legs can only take so much. My kids are on me constantly about walking. They brag about my DIL's mother and how she walks miles everyday. It is horrible to be compared to a women who does not have RA and Fibro We don't bleed so we are not ill? Its so hard to get people to understand that you are not faking an illness. I stopped taking my son to my appts. He interfers with my conversation with the doctor.

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Good for you. Sprinkle them with
seasoning careful with not to much. Make sure you have tiny unpealed but cleaned red and white potatoes. Put a could of dabs of butter on top. If possible use small roasting pan. I got some tiny ones at Dollar store.

REPLY
lioness | @lioness | Feb 1, 2018
In reply to @sandytoes14 "I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions...." + (show)
@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can't think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don't know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

Jump to this post

I heat up or get cold alot has to do with climate Back east the cold made me hurt if I didn't wear enough clothes,out here now when I get to hot I hurt so I have to wear the proper clothes and if my body is to hot I take a cool shower so alot has to do with weather the barometer also.It's 84 here and I have heavy socks on my feet as I also have cold hands and feet.Fibro does this also as I have O.A.so it's a toss up I think.Guessing game but I do believe it's alot of the climate as I write I'm sweating with cold feet ,go figure?

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