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Mucous Membrane Pemphigoid

Autoimmune Diseases | Last Active: Feb 12 10:40am | Replies (39)
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@brendaisthebest2024

Hi,

I was diagnosed with MMP a few months ago. I have been on steroids, mouth rinse, clobetasol, Doxycycline HYC. Now they have cut back to 20 mg of steroids and have added mycophenolate (this medicine the possible side effects scare me). I still have blisters in my mouth and arms, I'm wondering how long before all of this works. My mouth is better, gums are no longer bleeding or that sore. Has anyone tried eating better food / no gluten and it resolved the issues?

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Replies to "Hi, I was diagnosed with MMP a few months ago. I have been on steroids, mouth..."
audreyh | @audreyh | Feb 11 5:24pm

I am on Dapsone 50 mg a day. I cannot take Mycophenolate. It Caused an increase in my BP. I can't take many drugs because I am allergic to yellow dye and compound. I have asked about taking something more natural but there doesn't seem to be enough information on reactions to this condition. I also have the mmp in my left nostril. My ENT has tried several gels, etc. He also did several tests to see if it was an infection. I am now using a dab of vancomyscin in each nostril 3 times a week. I started out using it twice a day.

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