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Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: Feb 26 8:41pm | Replies (1327)

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@oregongirl

Parus, I have RA and I was also diagnosed with Fibro. I am presently see my doctors at the University of Texas Medical
center My doctor said I do not have Fibro I never thought to ask her - how do you know that? What is it they test to show that you have Fibro. I thought my RA had calmed down after 7 weeks of Methotrexate. But, I was SO Sick. I could not even eat. Everything came up. Even Liquid. So now I am on the Shots once a week. I start my Infusions next week. I am nervous about that Never having done the Infusions andI don't know what to expect. I was feeling so good and thought I had gotten the med into my body and then WALLA, pain came back. Today I have a headache. I feel so guilty as I cannot even clean the house. I usually do a bit here and there for about 15 minutes. I guess I should be thankful. I am sure there are many RA patients who cannot get up at all. Parus, I guess this is our life as long as we live.

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Replies to "Parus, I have RA and I was also diagnosed with Fibro. I am presently see my..."

@oregongirl, You could always call the doc’s office and ask how they know you don’t have fibromyalgia. There’s not a test, except one that I just learned is kind of questionable.

Is it the same pain as your RA pain? I just posted a new discussion last night about how Celebrex, which I just started 5 days ago, has remarkable effects on my fibro pain, including headache.

Also, @sandytoes14, and @parus, in that post I mentioned a company that is setting up for phase III trials for a combo of Celebrex and Famvir, using the theory (strongly supported, if I read this accurately) that the cold sore virus HSV-1 may well be responsible for all the disparate symptoms and ailments in this syndrome, including the wretched fibro fog.

I recommend anyone who is interested watch the short video on the top of their home page on “the science behind...” for explanation of how that may work:
http://innovativemedconcepts.com/index.html

I give a little more detail in that post, and there are contributions for other write-ups on the science, including an NIH synopsis of that study.

Xxoo

Lynne, There is a different paint with Firbro. I was told by a Dr in San Diego that I had Fibro. Does Fibro go away? Anywhere your question on the pain.
and RA. Both my legs ache and my arms are both sore,,,,,that is RA. I pray all this med they are putting in me will end the leg pain. Yes, my doctor in Oregon gave me Celebrex. I believe it is also used for pain. I might be wrong. I would like to stop some of the meds I take. I am going to work on them tomorrow and ask my doctor if I can quit some of these pills.

I was in A clinical study with Celebrex related to the effects on heart It is a pain pill for osteoarthritis It did help with pain but I couldn't take it ,it you have a sensitive stomach it gave me pain in stomach and I had to stop it.But I my heart was not affected and my by pass surgery was in 1996.As far as fibro as far as I know there is no known cause ,that's why there is no known cure.
The Dr,s and research have come up with these but nothing concrete yet

Hi oregongirl yes , for fibro is different from R.A.this affects your joints ,fibro is in you muscle ,fibers,tissues not your bones,as RA and O.A Celebrex is pain pill for arthritis but combined maybe with other meds it will help fibro.I dont know about fambri? but I did Tramadl @Aleve .

Lynneb, Well Fibro vs RA, is probably the way the pain is in your body. If my right leg hurts, my left one hurts, if I get itchy on one arm, it also affects the other arm. There is a blood test to prove the RA. But, she also had my blood checked for possible cancer due to one of my blood tests which she received. She is very careful. She said day one that she wanted to check something before she did any "icky" items that I would have to endure. Bone sample etc. I also get headaches, which you get with Fibro. I have fevers and very very hot spells with no warning. I am 75 so it is not hormonal. The pain is horrible, but I am sure FIBRO is also bad. I guess if I had to choose, I would take RA over Fibro. There are treatments for RA, but no one talks about treatments for FIBRO. I will watch the video and give you my feedback. I feel so good today, that if I had the money, I would head for the Mall and buy them out.

I get hot spells, my body feels like it's on fire at times and I don't have RA I was tested for it but I do have fibro so If say this is the culprit.Cool of with water is all I do

Be careful. I was diagnosed with fibro by a doctor in Palm Springs. Soon the RA showed up.

Fibro never goes away to my knowledge. I take magnesium and it helps me a lot as well as prescriptions. Lyrica is one.

Sadly, it does not go away. Although you do not have to have the wide spread pain, you will always have the tender points that will bother you if someone touches them. You might also continue to have Fibro Fog because you are not getting into a deep sleep.