← Return to Fibromyalgia pain: Let's connect

Discussion

Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: Oct 31 9:08am | Replies (1334)

Comment receiving replies
@oregongirl

Oh Lord Angie. I am so sorry. I used gabapenten and it worked for me. I just can't take opiates. Not because I get sick or anything. But I was hooked on them and it took TWO weeks of near death to get off of them. My doctor was furious that I did it with no help. I will never go thru that again. I was hooked on Morphine. My Dr never did anything for my RA except give me pain pills. He was a general practitioner. Who was not familiar with RA. I am so sorry Angie.

Jump to this post


Replies to "Oh Lord Angie. I am so sorry. I used gabapenten and it worked for me. I..."

i so happy for you that Gabapenten has worked for you. I take 3 pills a day and nothing. My brother also uses it and he get relief. I take Oxy when I really, really need them. Although it takes the edge off, it really does not help. That is why I am going for PT and steroid injections.

I had great satisfaction with the Steroid shots. I had a terrible rash for years. I dd not even know that it was associated with the RA. My doctor was only a General. I had to drive 4 hours to get to a Rumi Dr. I lived in middle of nowhere in Oregon So I felt fortunate to have the general. BUT, the difference with a RUMI doctor is day and night. The rash is gone. It will reappear again from what I have been told. But, now we know how to stop it. I am still getting the shot every visit and just got one yesterday with my infusion treatment. I must tell you to talk to your doctor about infusion treatment. Here is the drug they use. I am also listing(in next) post the drugs they give prior to the infusion. I am a new women today. I honestly can tell you I have no pain, EXCEPT for a fall I had as I was leaving. I hit my hip on something. Otherwise, pain is gone. I will have two more infusion treatments.

Here is the information I promised.....Infusion facts: I took Methotrexate 2.5 mg for 6 week by pill. It made me very ill whenever I ate. I would throw up each time by the 2nd bite. Then doctor put me on self injection by needle Methotrexate. I did not have any nausea with this shot I injected myself once a week. After one week my Infusion started. By IV a small bag but took 6 hours to take in. It is run very very slow. Then increased slowly by nurse every 30 minutes. Every one has a timer. I was in a room with about 20 or more people all receiving Infusion for different things. Cancer, RA and others that I don't know about. I have two more Infusions to come every two weeks. I believe the mg will be increased each time. The infusion drug is called riuximab. Prior to the infusion of the riuximab I received by IV Tylenol, 650 Mg tablet, then pepcid by IV 20 mg.,then by IV, solumedrol 125 mg IV Benadryl 59 Mg, then they wait a few minutes and start the rluximab. It is considered aggressive. But, my RA was out of control due to poor medical in Oregon. I suffered for months when it could have been controlled. I have no idea how long this lasts, but even one day has been paradise. I actually got on the Treadmill today and did 5 minutes. I want to increase to 30 minutes eventually. The exercise I need for weight loss and making me strong is once again. It is proof to me that the drugs are working. NO HABIT FORMING DRUGS< NO Narcotics. I LOVE it. Talk to your doctor about this. If he or she will not listen get to a Reumy as soon as possible.

Steroid injections work great. But my appt with my Dr is far apart. I going to talk to her about my giving myself injections. I am not familiar with steroid. Always thot it bad until doc gave me a shot and all my pain seen to fly away.is it habit firming? thanks