Sorry to mislead you. We did not go to MD Anderson, thought about it, I was too overwhelmed and both our sons live out of state. We live in Austin and worked with TX Oncology and St Davids Tranplant team.
Sorry to mislead you. We did not go to MD Anderson, thought about it, I was too overwhelmed and both our sons live out of state. We live in Austin and worked with TX Oncology and St Davids Tranplant team.
The goal is getting your husband’s cancer under control and into remission. The ASCT is a means to accomplishing that. So really, the best thing to do is not dwell on the past or where he had the procedure done. It won’t accomplish anything but cause you unnecessary stress. Honestly, given your circumstances of being caregiver, with your only support system being out of state, I think you made a very reasonable decision to go ahead with the team in Austin. Your husband was already seriously ill and to relocate for an extended stay in another city 3 hours from your home may have compounded things even further for both of you. Please give yourself grace…you’re doing a fabulous job…no second guessing!
No matter where he had the transplant, his body would have gone through the similar challenges with the pre-conditioning chemo and the transplant itself. Being able to use his own cells, reduces the recovery time and some side effects because he won’t have any issues with cell rejection. But there is fatigue and sometimes nausea hanging around for a while. I say this frequently in this group, that stem cell transplant and recovery, whether auto or allo, is a marathon, not a race. Slow and steady gains are normal.
I thought you might like to read through a couple of helpful guides from Mayo for caregivers. The first is for you as a caregiver about how to make sure you’re taken care of too! Not just your husband.
The second link talks about the auto-transplant but also gives more detail as to what to do when your husband comes home in terms of infection control, diet, etc.
It will feel daunting but soon enough you’ll both fall into a rhythm. Look for small accomplishments instead of focusing on the broad picture. That is overwhelming for anyone.
I’m not sure which would be best doctor to contact about your husband’s memory issues. Perhaps talk with his oncology or transplant team to see if they can offer referrals to neurology. The tumor may have caused the lingering memory issues and he may benefit from some type of memory therapist.
It will be nice to have your husband home again. Do you have any questions about how to prepare your home for your husband’s return?
The goal is getting your husband’s cancer under control and into remission. The ASCT is a means to accomplishing that. So really, the best thing to do is not dwell on the past or where he had the procedure done. It won’t accomplish anything but cause you unnecessary stress. Honestly, given your circumstances of being caregiver, with your only support system being out of state, I think you made a very reasonable decision to go ahead with the team in Austin. Your husband was already seriously ill and to relocate for an extended stay in another city 3 hours from your home may have compounded things even further for both of you. Please give yourself grace…you’re doing a fabulous job…no second guessing!
No matter where he had the transplant, his body would have gone through the similar challenges with the pre-conditioning chemo and the transplant itself. Being able to use his own cells, reduces the recovery time and some side effects because he won’t have any issues with cell rejection. But there is fatigue and sometimes nausea hanging around for a while. I say this frequently in this group, that stem cell transplant and recovery, whether auto or allo, is a marathon, not a race. Slow and steady gains are normal.
I thought you might like to read through a couple of helpful guides from Mayo for caregivers. The first is for you as a caregiver about how to make sure you’re taken care of too! Not just your husband.
The second link talks about the auto-transplant but also gives more detail as to what to do when your husband comes home in terms of infection control, diet, etc.
It will feel daunting but soon enough you’ll both fall into a rhythm. Look for small accomplishments instead of focusing on the broad picture. That is overwhelming for anyone.
I’m not sure which would be best doctor to contact about your husband’s memory issues. Perhaps talk with his oncology or transplant team to see if they can offer referrals to neurology. The tumor may have caused the lingering memory issues and he may benefit from some type of memory therapist.
It will be nice to have your husband home again. Do you have any questions about how to prepare your home for your husband’s return?
Thank you for the supportive feedback. We wiill have Rehab Without Walls coming to our home once my husband is discharged. They will provide OT, PT and speech for cognitive/memory function, 5 days a week.
I will have help almost daily to stay with my husband while I run errands, go to the gym and meet up with friends.
I will check out the links you posted.
My father aged 71 diagnosed with Primary CNS Lymphoma in Dec 2024. Symptoms in Nov 2024 included vomiting's, loss of appetite and weight loss.
So far he has undergone 2 sessions of Chemo (MTR - Methotrexate, Rituximab & Temozolomide) in Bangalore, India. We have appointment for 10/1/25 for MRI scan to see how tumor responded to the treatment and any course correction needed.
His left hand is completely unresponsive but his left leg is slightly better. He is on liquid diet (RT Feed) and still has problem with speech and swallow.
Doctor has planned for 6 chemo sessions to start with.
Wanted to check with this group can his left hand and leg be normal again? Are there any other options for treatment prescribed?
My father aged 71 diagnosed with Primary CNS Lymphoma in Dec 2024. Symptoms in Nov 2024 included vomiting's, loss of appetite and weight loss.
So far he has undergone 2 sessions of Chemo (MTR - Methotrexate, Rituximab & Temozolomide) in Bangalore, India. We have appointment for 10/1/25 for MRI scan to see how tumor responded to the treatment and any course correction needed.
His left hand is completely unresponsive but his left leg is slightly better. He is on liquid diet (RT Feed) and still has problem with speech and swallow.
Doctor has planned for 6 chemo sessions to start with.
Wanted to check with this group can his left hand and leg be normal again? Are there any other options for treatment prescribed?
I was diagnosed with primary CNS lymphoma in 2019 at age 58. I had 6 rounds of MRT chemo, then stem cell transplant. I had physical therapy on my left side, because when surgeon took biopsy he touched my brain. I had physical therapy for 2-3 months. Did you have a stroke? I am completely healed and cured! I pray the same for you!
I was diagnosed with primary CNS lymphoma in 2019 at age 58. I had 6 rounds of MRT chemo, then stem cell transplant. I had physical therapy on my left side, because when surgeon took biopsy he touched my brain. I had physical therapy for 2-3 months. Did you have a stroke? I am completely healed and cured! I pray the same for you!
Very happy to hear you are completely cured. No stroke or seizures for my father. His only symptoms were vomiting's, weight loss and loss of appetite in Nov 2024. As of today (after 2 cycles of Chemo) he does not have any vomiting's but he is unable to swallow or stand and his left has become completely unresponsive
Very happy to hear you are completely cured. No stroke or seizures for my father. His only symptoms were vomiting's, weight loss and loss of appetite in Nov 2024. As of today (after 2 cycles of Chemo) he does not have any vomiting's but he is unable to swallow or stand and his left has become completely unresponsive
Yes, vomiting's have subsided. He is still on RT feed as swallowing is still a problem. But we got some good news. We admitted him for 3rd chemo but before that did a MRI on 10/Jan. 3 small tumors have disappeared and main tumor started shrinking.
Protocol followed by Medical Team: Rituximab (600 mg), Methotrexate (3200 mg) and Temozolomide tablets to be taken from 18/Jan
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Sorry to mislead you. We did not go to MD Anderson, thought about it, I was too overwhelmed and both our sons live out of state. We live in Austin and worked with TX Oncology and St Davids Tranplant team.
He has not worked with a doctor for memory issues.
The goal is getting your husband’s cancer under control and into remission. The ASCT is a means to accomplishing that. So really, the best thing to do is not dwell on the past or where he had the procedure done. It won’t accomplish anything but cause you unnecessary stress. Honestly, given your circumstances of being caregiver, with your only support system being out of state, I think you made a very reasonable decision to go ahead with the team in Austin. Your husband was already seriously ill and to relocate for an extended stay in another city 3 hours from your home may have compounded things even further for both of you. Please give yourself grace…you’re doing a fabulous job…no second guessing!
No matter where he had the transplant, his body would have gone through the similar challenges with the pre-conditioning chemo and the transplant itself. Being able to use his own cells, reduces the recovery time and some side effects because he won’t have any issues with cell rejection. But there is fatigue and sometimes nausea hanging around for a while. I say this frequently in this group, that stem cell transplant and recovery, whether auto or allo, is a marathon, not a race. Slow and steady gains are normal.
I thought you might like to read through a couple of helpful guides from Mayo for caregivers. The first is for you as a caregiver about how to make sure you’re taken care of too! Not just your husband.
The second link talks about the auto-transplant but also gives more detail as to what to do when your husband comes home in terms of infection control, diet, etc.
It will feel daunting but soon enough you’ll both fall into a rhythm. Look for small accomplishments instead of focusing on the broad picture. That is overwhelming for anyone.
Caregivers for BMT patients:
https://connect.mayoclinic.org/blog/caregivers-for-bmt-car-t-and-hematology/tab/support/#ch-tab-navigation
Info on Autologous transplant and after care: https://connect.mayoclinic.org/blog/caregivers-for-bmt-car-t-and-hematology/tab/transplant-journey/#Infection_Prevention
I’m not sure which would be best doctor to contact about your husband’s memory issues. Perhaps talk with his oncology or transplant team to see if they can offer referrals to neurology. The tumor may have caused the lingering memory issues and he may benefit from some type of memory therapist.
It will be nice to have your husband home again. Do you have any questions about how to prepare your home for your husband’s return?
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1 ReactionThank you for the supportive feedback. We wiill have Rehab Without Walls coming to our home once my husband is discharged. They will provide OT, PT and speech for cognitive/memory function, 5 days a week.
I will have help almost daily to stay with my husband while I run errands, go to the gym and meet up with friends.
I will check out the links you posted.
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Helpful -
Hug
2 ReactionsMy father aged 71 diagnosed with Primary CNS Lymphoma in Dec 2024. Symptoms in Nov 2024 included vomiting's, loss of appetite and weight loss.
So far he has undergone 2 sessions of Chemo (MTR - Methotrexate, Rituximab & Temozolomide) in Bangalore, India. We have appointment for 10/1/25 for MRI scan to see how tumor responded to the treatment and any course correction needed.
His left hand is completely unresponsive but his left leg is slightly better. He is on liquid diet (RT Feed) and still has problem with speech and swallow.
Doctor has planned for 6 chemo sessions to start with.
Wanted to check with this group can his left hand and leg be normal again? Are there any other options for treatment prescribed?
I was diagnosed with primary CNS lymphoma in 2019 at age 58. I had 6 rounds of MRT chemo, then stem cell transplant. I had physical therapy on my left side, because when surgeon took biopsy he touched my brain. I had physical therapy for 2-3 months. Did you have a stroke? I am completely healed and cured! I pray the same for you!
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Like -
Helpful -
Hug
3 ReactionsVery happy to hear you are completely cured. No stroke or seizures for my father. His only symptoms were vomiting's, weight loss and loss of appetite in Nov 2024. As of today (after 2 cycles of Chemo) he does not have any vomiting's but he is unable to swallow or stand and his left has become completely unresponsive
@vamsinrv, how is your father doing? Has is cancer team been able to address his symptoms?
Yes, vomiting's have subsided. He is still on RT feed as swallowing is still a problem. But we got some good news. We admitted him for 3rd chemo but before that did a MRI on 10/Jan. 3 small tumors have disappeared and main tumor started shrinking.
Protocol followed by Medical Team: Rituximab (600 mg), Methotrexate (3200 mg) and Temozolomide tablets to be taken from 18/Jan
-
Like -
Helpful -
Hug
3 Reactions