← Return to Cerebral amyloid angiopathy

Discussion

Cerebral amyloid angiopathy

Stroke & Cerebrovascular Diseases | Last Active: 5 days ago | Replies (121)

Comment receiving replies
@lisalucier

@nellie1 - I imagine you're nervous being told you have cerebral microbleeds and amyloid in places. And I'm sure it's a huge surprise that this scan that was normal not long ago now is showing something different.

In my experience dealing with serious medical matters, I've found it scary to read testing or scan results before meeting with the doctor (though I do it anyhow), especially because radiologic and lab results can be full of jargon.

I'd like to tag some members who may have knowledge or experience from their own lives or the lives of a loved one related to getting information about findings of cerebral microbleeds and amyloid, including @catherinep52 @zerodas @tcainaru @trishannabanana @happypappy2.

nellie1 - Do you have an in-person appointment or phone call scheduled with your doctor to discuss the scan's results? What would you say are your biggest concerns right now?

Jump to this post


Replies to "@nellie1 - I imagine you're nervous being told you have cerebral microbleeds and amyloid in places...."

I have an in-person with my Oncologist next month as well as a first Neurology video conference. My biggest concern is becoming slowly incompetent and helpless. The lung cancer was a complete surprise and now this. I am feeling overwhelmed.