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Wife: Stop Reading Those Forums

Prostate Cancer | Last Active: 5 days ago | Replies (21)

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@survivor5280

I agree on all counts. Kidney cancer had me in a dark place for a long time because I was told if it came back it would be mostly untreatable, so I waited for the other shoe to drop. But, in the end, I had a spare and my life didn't have to change hardly at all outside of not being able to take certain types of medications or eat too much of certain foods.

This one is different, my life changes, my abilities as a man change (or could be broken), my ability to live life without diapers change (or could be broken) - and that last one is a biggie for me and I know it is for a lot of guys.

Reading study after study the one concern of the vast majority of men is the quality of life when they have PC, it's about 80% if I recall correctly. They can deal with the loss of the prostate itself, but the after effects are why they chase every possible alternative. And, most men also agreed that ED, while horrible, was at least somewhat manageable, it's the incontinence that concerned them the most. And it's these factors, the QOL changes, that have driven every new procedure and technology related to treating PC - again, from reading scientific journals on the topic.

And, I'm feeling the same. Yesterday broke me, I'm still broken from it. I know what's going on but it's not a light switch to turn off. I'm not a "dreader" by nature, but this I dread. I might wake up and everything is A-OK, but it's the "or I might not" that I obsess over.

I'm doing what I am able to control. I'm talking to my first shrink tomorrow, my wife is very supportive, I just need to find tools to cope because this cannot continue in this state.

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Replies to "I agree on all counts. Kidney cancer had me in a dark place for a long..."

If it is any consolation, I had surgery September 16th of this year and have been continent for 3 weeks now. No diapers or pads. If you do your kegels before and after surgery it really helps.

Please know everyone on this sub-forum support you and are here for you.

Survivor5280: (I posted a reply to an earlier message string you started and that posting summarizes my journey with PC, and I won't repeat that information. I just wanted to add the following) -

When I received the unexpected pathology report on my biopsy I very quickly realized that there were two paths available to me at that point: do nothing - and probably have a considerable shortened life span, or treat the cancer. The particulars in my case led multiple doctors to recommend surgery.

It was daunting to think about the 'what might be's' after surgery, but it was also very sobering to think about what would be ahead if I didn't do anything. For me this fundamental realization - that I really had no practical choice other than to go ahead with the surgery - made it easier to come to grips with the unknowns that lay ahead.

I wish you all the best as you move through these next weeks. As others have offered, I would be happy to communicate via PM.