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Anyone else find the side effects of Hydrea 500MG frightening?

Blood Cancers & Disorders | Last Active: Jan 8 5:14am | Replies (162)
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@mocat47

77 yr old female , ET, diagnosed 10 mos ago , platelets 940, 000. Started Hydroxyurea 500 mg daily , first 2 mos platelets decreased dramatically , then plateau’d, added 1 extra capsule/week & platelets dropped to normal. Was also reluctant to start cytoxic agent but no problems & better than having a stroke. Also take daily baby Asa

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Replies to "77 yr old female , ET, diagnosed 10 mos ago , platelets 940, 000. Started Hydroxyurea..."
Colleen Young, Connect Director | @colleenyoung | Dec 24, 2024

Welcome new members @mocat47 and @juelie

@mocat47, I can understand the reluctance to taking a cytoxic agent. Your story demonstrates how not everyone experiences side effects. What a relief that an adjustment to the dosage of hydroxyurea is working for you. Yes, better than suffering a stroke.

@juelie, you might be interested in these related discussions:
- Hair loss with ET and on hydroxyurea https://connect.mayoclinic.org/discussion/hair-loss-5/
- People living with ET and taking Hydrea: Anybody setting records https://connect.mayoclinic.org/discussion/anybody-setting-records/

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