Has anyone experienced red rash on face after starting Evenity?

Just got off phone with Evenity (AMGEN) company nurse. Hypersensitivity to drug. Suggested - stop treatment.
AND…of course, had shots yesterday!🙄
Thanks…if not for your post I might not have made connection between itchy rash and Evenity!

It's unfortunate to hear some people with a rash on their face or other areas had doctors tell them they didn't think it was the Evenity, when a simple google search says: "Like most drugs, Evenity can cause an allergic reaction in some people. Symptoms can be mild to serious and can include: skin rash, itchiness, and flushing (temporary warmth, redness, or deepening of skin color)." If that's the reason, antibiotics wouldn't be necessary, would they?

When I was on Evenity, I did experience redness and flushing of the face. This happened every time I took the drug. My doctor took me off Evenity after talking to the manufacturer of the drug, and put me on Reclast. Evenity was not a good match for me.

I've had a rash all over my face using tymlos for 2 yrs. Dermatologist said it wasn't the tymlos, and all his dx, and creams haven't worked. Prior, in 2018, on Forteo, kept getting a similar rash all over my back. Doctors never figured it out, but again it wasn't the drug. However, once I stopped Forteo, it went away and never came back. These doctors don't know or care. I am finishing my 15th tymlos pen this month, DXA, in a few weeks. I don't have much hope. Dr said Prolia next, which I won't do, and I've told him from day one,nor reclast. I need severe back surgery, so that stuff is out. I failed bisphosphates, so I am out of options.

Hi @garycorb

In addition to the rash on my face, I had weird, unheard of, and some very severe, reactions to Tymlos. My doc, for some reason, never thought Tymlos caused the problems, however, after 9-1/2 months of it, I'd had enough and told him I wanted to stop the treatment to see if the issues would clear. He finally agreed . . . all issues cleared within a few days to a week. A full year of Evenity and I had no reactions save a bit of pain and swelling at the injection sites for a few days. I've had more Reclast infusions than recommended and I, too, declined Prolia (thanks, in large part, to those who cared enough to post on this board).

I hope your upcoming DEXA results are positive! I'm sorry to hear that you've had a difficult time with your OP treatment.

Happy Holidays! Wishing everyone a safe and enjoyable season and best wishes for happiness and good health in 2025. Cheers!

Smart and caring doc, @ladydiscdy! Yay!

I just did my second set of shots and so far no rash. I did the reclast for 5 years and was told that’s all you can do it for.. I didn’t mind that once a year

I hope you have success with the Evenity, it just didn’t agree with me. I have had two years of Reclast and since my numbers improved my endocrinologist advised me that I can now have a break. That being said she has also ordered a full blood work up again to check the bone markers in 6 months. I am hoping that I can continue my break with Reclast. I agree with you though the once a year with Reclast is so much more convenient.

I’m so glad that it worked for you. I’m hoping the evenity works for me bc so far nothing has.. I just wish I could get this rib pain figured out. I had this before I started the shots.
I’m so glad I have people on here that I can talk to.

Beanieone you said " I had weird, unheard of, and some very severe, reactions to Tymlos." Would you post the reactions that you had to Tymlos . I have had flusing, rash, pounding heart, which finally stopped 5 1/2 months into it.