1. < Fibromyalgia

Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

lioness | @lioness | Jan 24, 2018
In reply to @oregongirl "Lioness. God is the answer. True. It gets hard for me to walk, but God is..." + (show)
@oregongirl

Lioness. God is the answer. True. It gets hard for me to walk, but God is aware of me and loves me

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I know it's hard to walk but that's the best thing you can do for yourself.start slow get outside breath the fresh air I felt better so just came in from walk.I can't walk far either.

REPLY
lioness | @lioness | Jan 24, 2018
In reply to @taterjoy "HI @clownscrytoo. I am sorry you are suffering with a terrible case of fibro. My Mom..." + (show)
@taterjoy

HI @clownscrytoo. I am sorry you are suffering with a terrible case of fibro. My Mom had a bad case before it was an official "diagnosis" in the medical literature. She visited Mayo (Rochester) in the later 1970's and was diagnosed with Fibro. She took small doses of Elavil (10mg) daily for years, which helped her tremendously. She was also told to avoid foods in the nightshade family, which helped. They also recommended weight loss--a diet with lots of veggies, lean proteins including dried beans (lots of complex fiber) helped her the most.

She has learned that a firm seat is much better for her than a soft, cushy seat. She made a wedge-shaped cushion that is VERY firm to use in the car and when out of the house. She also feels that her pain is much reduced when her sleep is better quality. When her fibro flares, she can only lie down or stand (not sit). I pray that a cure will be found, and that you will experience many more "good" days ahead.

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I,!'ll keep an eye on my blood pressure thanks for the information.

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lioness | @lioness | Jan 24, 2018
In reply to @swamma08 "I was diagnosed with fibromyalgia almost 20 years ago. Nothing I have tried has helped the..." + (show)
@swamma08

I was diagnosed with fibromyalgia almost 20 years ago. Nothing I have tried has helped the constant pain. My doctor will only give me Fioricet without codeine. I also have postherpetic neuralgia after a bad case of shingles 3 years ago. Every night I take a Fioricet, 3 Tylenol PMs and a small glass (or 2) of brandy to help me sleep. I know I'm headed down a bad road cuz my husband tells me my respirations are very slow and shallow while sleeping (about 10-12/min) and it's very hard to wake up in the am. But I feel so desperate to escape the pain for a few hours that I'm willing to take chances. i'm too chicken to go out and get some of the good stuff on the streets!

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I agree with Jen as a nurse I've seen people who overuse the Nsaids that have not only, liver ,but kidney problems Go talk with your pain Dr.or rheumatologist.

REPLY
robbinr | @robbinr | Jan 24, 2018
In reply to @taterjoy "HI @clownscrytoo. I am sorry you are suffering with a terrible case of fibro. My Mom..." + (show)
@taterjoy

HI @clownscrytoo. I am sorry you are suffering with a terrible case of fibro. My Mom had a bad case before it was an official "diagnosis" in the medical literature. She visited Mayo (Rochester) in the later 1970's and was diagnosed with Fibro. She took small doses of Elavil (10mg) daily for years, which helped her tremendously. She was also told to avoid foods in the nightshade family, which helped. They also recommended weight loss--a diet with lots of veggies, lean proteins including dried beans (lots of complex fiber) helped her the most.

She has learned that a firm seat is much better for her than a soft, cushy seat. She made a wedge-shaped cushion that is VERY firm to use in the car and when out of the house. She also feels that her pain is much reduced when her sleep is better quality. When her fibro flares, she can only lie down or stand (not sit). I pray that a cure will be found, and that you will experience many more "good" days ahead.

Jump to this post

I tried amitryptaline and gained 10 pounds in a WEEK! No thank you.

REPLY
robbinr | @robbinr | Jan 24, 2018
In reply to @swamma08 "I was diagnosed with fibromyalgia almost 20 years ago. Nothing I have tried has helped the..." + (show)
@swamma08

I was diagnosed with fibromyalgia almost 20 years ago. Nothing I have tried has helped the constant pain. My doctor will only give me Fioricet without codeine. I also have postherpetic neuralgia after a bad case of shingles 3 years ago. Every night I take a Fioricet, 3 Tylenol PMs and a small glass (or 2) of brandy to help me sleep. I know I'm headed down a bad road cuz my husband tells me my respirations are very slow and shallow while sleeping (about 10-12/min) and it's very hard to wake up in the am. But I feel so desperate to escape the pain for a few hours that I'm willing to take chances. i'm too chicken to go out and get some of the good stuff on the streets!

Jump to this post

This is going to sound totally stupid and so new-age it makes me sick, but I read this book by a Bhuddist Monk and he said that pain is just a sensation, remind yourself that it is just pain. Mind you, that is not very helpful when you have to crawl to the bathroom and you feel like screaming because it feels like every nerve in your body is exploding. But, it is just pain. Sometimes it hurts to wear clothes, but it is just pain, and I sure ain't going naked in public:}

REPLY
lioness | @lioness | Jan 24, 2018
In reply to @taterjoy "HI @clownscrytoo. I am sorry you are suffering with a terrible case of fibro. My Mom..." + (show)
@taterjoy

HI @clownscrytoo. I am sorry you are suffering with a terrible case of fibro. My Mom had a bad case before it was an official "diagnosis" in the medical literature. She visited Mayo (Rochester) in the later 1970's and was diagnosed with Fibro. She took small doses of Elavil (10mg) daily for years, which helped her tremendously. She was also told to avoid foods in the nightshade family, which helped. They also recommended weight loss--a diet with lots of veggies, lean proteins including dried beans (lots of complex fiber) helped her the most.

She has learned that a firm seat is much better for her than a soft, cushy seat. She made a wedge-shaped cushion that is VERY firm to use in the car and when out of the house. She also feels that her pain is much reduced when her sleep is better quality. When her fibro flares, she can only lie down or stand (not sit). I pray that a cure will be found, and that you will experience many more "good" days ahead.

Jump to this post

Thanks I,ll have to watch my weight then @ B.P

REPLY
lioness | @lioness | Jan 24, 2018
In reply to @swamma08 "I was diagnosed with fibromyalgia almost 20 years ago. Nothing I have tried has helped the..." + (show)
@swamma08

I was diagnosed with fibromyalgia almost 20 years ago. Nothing I have tried has helped the constant pain. My doctor will only give me Fioricet without codeine. I also have postherpetic neuralgia after a bad case of shingles 3 years ago. Every night I take a Fioricet, 3 Tylenol PMs and a small glass (or 2) of brandy to help me sleep. I know I'm headed down a bad road cuz my husband tells me my respirations are very slow and shallow while sleeping (about 10-12/min) and it's very hard to wake up in the am. But I feel so desperate to escape the pain for a few hours that I'm willing to take chances. i'm too chicken to go out and get some of the good stuff on the streets!

Jump to this post

Like most of the masses they have no idea what chronic pain means.it's just pain ,come on they should be in you shoes

REPLY
trueheart | @trueheart | Jan 24, 2018
In reply to @swamma08 "I was diagnosed with fibromyalgia almost 20 years ago. Nothing I have tried has helped the..." + (show)
@swamma08

I was diagnosed with fibromyalgia almost 20 years ago. Nothing I have tried has helped the constant pain. My doctor will only give me Fioricet without codeine. I also have postherpetic neuralgia after a bad case of shingles 3 years ago. Every night I take a Fioricet, 3 Tylenol PMs and a small glass (or 2) of brandy to help me sleep. I know I'm headed down a bad road cuz my husband tells me my respirations are very slow and shallow while sleeping (about 10-12/min) and it's very hard to wake up in the am. But I feel so desperate to escape the pain for a few hours that I'm willing to take chances. i'm too chicken to go out and get some of the good stuff on the streets!

Jump to this post

I am sorry you have pain I understand

REPLY
trueheart | @trueheart | Jan 24, 2018
In reply to @swamma08 "I was diagnosed with fibromyalgia almost 20 years ago. Nothing I have tried has helped the..." + (show)
@swamma08

I was diagnosed with fibromyalgia almost 20 years ago. Nothing I have tried has helped the constant pain. My doctor will only give me Fioricet without codeine. I also have postherpetic neuralgia after a bad case of shingles 3 years ago. Every night I take a Fioricet, 3 Tylenol PMs and a small glass (or 2) of brandy to help me sleep. I know I'm headed down a bad road cuz my husband tells me my respirations are very slow and shallow while sleeping (about 10-12/min) and it's very hard to wake up in the am. But I feel so desperate to escape the pain for a few hours that I'm willing to take chances. i'm too chicken to go out and get some of the good stuff on the streets!

Jump to this post

Am I in the right screen I just noticed some of the other post 2016 I didn't go back in time did I it's 2018

REPLY
Texas Freedom | @oregongirl | Jan 25, 2018
In reply to @taterjoy "HI @clownscrytoo. I am sorry you are suffering with a terrible case of fibro. My Mom..." + (show)
@taterjoy

HI @clownscrytoo. I am sorry you are suffering with a terrible case of fibro. My Mom had a bad case before it was an official "diagnosis" in the medical literature. She visited Mayo (Rochester) in the later 1970's and was diagnosed with Fibro. She took small doses of Elavil (10mg) daily for years, which helped her tremendously. She was also told to avoid foods in the nightshade family, which helped. They also recommended weight loss--a diet with lots of veggies, lean proteins including dried beans (lots of complex fiber) helped her the most.

She has learned that a firm seat is much better for her than a soft, cushy seat. She made a wedge-shaped cushion that is VERY firm to use in the car and when out of the house. She also feels that her pain is much reduced when her sleep is better quality. When her fibro flares, she can only lie down or stand (not sit). I pray that a cure will be found, and that you will experience many more "good" days ahead.

Jump to this post

Lioness. Meeting with a Rhematologist will be best They will always do blood work up and check your blood frequently to make sure you are not damaging some internal organ with the drugs you need to take. My drug is pretty strong and is also used for Cancer. The first 7 weeks I was miserable and I as well as my children thought what could possibly be the benefit to using this drug? But, now I have adjusted and will be injecting it on my own once a week. Injecting will eliminate the nausea. I was diagnosed with Fibermialga for years and then suddently the RA showed up in my blood. I went for years with no treatment for the RA and I not am facing the result of that. My doctor is doing all she can to make me comfortable.

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