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Relapse endometrial cancer
So, I was diagnosed w/stage 1A grade 1 endometrial cancer in May of 2018. After a laparoscopic hysterectomy, all was fine until relapse diagnosed 3 weeks ago. The tumor didn't even show on MRI, and the PET showed nothing. I am about to start radiation. Is there anyone out there in similar situation now or w/past experience? If so, I'd love to hear from you.Thank you.
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@riverland889 Those are both excellent places to get your second and third opinions. Will you let me know what you learn?
Just to elaborate a bit, Signatera tests for tumor DNA in your blood. So it can be used frequently for surveillance.
First, the company sequences the DNA from your tumor surgical specimen, looking for mutations, and then it designs a test just for your tumor that detects those mutations.
My impression from reading the pancreas cancer board is that for them, normal tumor markers start to rise significantly before the Signatera comes up positive. I had a different blood tumor DNA test after my cancer recurrence was clearly visible by CT scan, with several sizable tumors, and it didn't detect anything.
So testing for tumor DNA in your blood is a nice idea, but it seems to have a problem with low sensitivity/false negatives in many cases.
Yes I will
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1 ReactionHas anyone had vaginal brachytherapy right after a hysterectomy? If so did you have a reoccurrence? Or you did not have a reoccurrence?I’m 68 stage1a2 not sure if I want/should get the VB treatments. For some reason VB treatments scare me, terribly
@paz1956 I looked through your earlier comments and could not figure out if you have already had a hysterectomy? Since you know that you are Stage 1a I'm thinking you have already had a hysterectomy as the stage is assigned in the pathology lab by the pathologist who looks at the tissue that was removed during surgery. What does your oncological surgeon recommend?
Hi @naturegirl5, yes I had radical hysterectomy all markers are clear my oncologist surgeon is recommending 4 VB for prevention but for some reason my brain is fighting the treatment. Part of me is wondering if the cancer comes back would radiation be an option? I guess it would depend on the type of cancer, I over think things at times & cancer is very complicated. The other concern is the dilator & you and others reassured me on the use which isn’t that bad. Side effects? Everything scares me & I keep trying for a way out which I believe just do it and pray for the best.
Hope you are doing well!
Thank You for all your help and any additional thoughts
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1 Reaction@paz1956 After replying to your question about CT scans I looked back to see what you had posted earlier. I see that your oncologist recommended vaginal brachytherapy for prevention. And your most recent post indicates that you did the vaginal brachytherapy.
Like you I have modified my diet so that I have eliminated most ultraprocessed foods. I haven’t completely eliminated sugar as I find that is more difficult for me to do so I have worked to greatly reduce my intake of sugar. I had a mostly sedentary job before retirement although I did make a point to exercise most days. I continue to do that as I find if I sit too long these days I am stiff and uncomfortable from osteoarthritis. One of my friends is 4 years older than me and she is my role model for nutrition and exercise. I refer to her as “an energizer bunny”.