Family members who can't see your pain can be cruel. I so hope that the infusions are helpful and are making a significant improvement to your health. I spent 6k one year at a Fibro clinic for IV meds twice a month that were basically a Very Expensive Enema. They just ran right through me, leaving my gut a wreck. When someone says that they have a headache you can't see it, but we've all had one and we know that it hurts. I tell my family about my illness only if they specifically ask. When my brother asked and I told him it felt like I had a bad case of Flu ALL the Time, he said, "I'd just shoot myself." Thanks Bro! Often with friends they don't understand when you cancel or can't do something with them. Those folks just stop being your friends. It is no loss. We have to have compassion for ourselves and for those who don't understand and say cruel things. If my husband says, "I didn't understand which thing you were complaining about." to me one more time...to the Moon! One small vindication for me was I finally got an MRI on my right shoulder. For two years I thought it was just Fibro pain, but the AC is torn and hanging by a thread. Papercuts and broken bones feel the same to me. Chin up, eyes ahead. You are brave and dealing with it - that is what matters. Remember what they say about opinions, everyone has them just like other parts of their anatomy:}