Is there a group here for spinal cord stimulator recipients?

I had a Sprint PNS installed a little over two weeks ago. My legs now feel very weak. My arms feel strange too. I was walking down bleachers yesterday and almost fell from the weakness. Does anyone know if this device can be the cause of my weakness? TIA

@vikkitennis i will keep everyone updated that’s how we learn. I’ve really struggled going thru with the stimulator just looking at the pamphlet and the doctor explaining doesn’t work for me after a lot of researching I found a set of videos that detailed the surgery now I understand better. With me on so much meds and not helping legs and back I’m concerned with immediately stopping all them to see if stimulator really works because of withdrawals. It sure would be nice to stop all of them and save the money (and liver and kidneys) .

I've tried lowering the strength. Doesn't seem to make any difference. But I do see a difference when my battery pack is getting lower.
My feeling is that it's an electrical issue.

I had the Boston Scientific SCS implant surgery in 2021. I know it helps many people with back pain. Although the trial gave me great results, the implant never helped my lower back pain. All I was doing was charging the battery every 7-10 days & getting many re-adjustments. So, my dr advised me to have it removed & I did that Feb 2024. It likely will help you, but do your own research!

My doctor said this may be the way to go for my pain. I had 6 nerve blocks and none worked. I'm not sure about going this route. I haven't heard that many people have had luck with the implant. I appreciate peoples comments it's going to help me going down the route.

Do your research, and find out which company offers the SCS to combat your specific pain.
The pain management doctor advised Abbott.
I was advised to have the "paddles" inserted, to allow the pain to transfer to the pain in a more controlled and efficient manner, as opposed to the lead wires. The paddles are more painful for recovery, and with what a surgeon told me, the lead wires are easier to implant. I didn't want easer for the surgeon, I wanted pain control.
As it is, the device isn't what I hoped it to be, and I will see the surgeon late December and discuss what and how, and possible removal. It will be almost two years since the device was implanted when I visit the neurosurgeon.
Also, interview the doctors. I interviewed three, one from Mayo. It is big money, and they all want you.

The SCS didn't help with my back pain either, but it has certainly helped hugely with my sciatica pain.

@vikkitennis I finally got approved for the stimulator and have been scheduled for surgery Tuesday praying it helps me to get enough relief

I’ve had my Medtronic SCS for 16 months. The trial went well then I decided to have it surgery implanted. This was for chronic back pain and leg pain. My L5/S1 discs are gone, bone on bone. I’m 69 years old and didn’t want major back surgery. After the surgery things went well for a few months. Then I noticed I had issues emptying my bladder. Talked to my pain doc and the Med. Rep and said they never heard overstimulation of the bladder? They changed the programs several times because I still had back and leg pain. Now I have chronic prostatitis and bladder issues. Anyone in the group experienced side effects like this?

I had my stimulator implanted 16 months ago. It helped a little with my chronic back & leg pain. They had to reprogram it several times and I still have pain. After a few months I was having difficulty with emptying my bladder and developed chronic prostatitis. I’ve been complaining about this “ overstimulation“ for over a year with all my doctors. The only responses I got was we’ve never heard of overstimulation. Well, I shut the thing off and 80% of my prostatitis pain one away within 24 hours. I will have it removed in the next few months. I didn’t have a very good experience as you can tell.