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no improvement with evenity

Osteoporosis & Bone Health | Last Active: 2 days ago | Replies (27)

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@michaellavacot

Hi @ripley - I've had numerous tests but still no cause for my hypercalciuria. I tried all of the thiazides at one point and they did reduce urine calcium by about 40%, but I started having irregular heart beats (PVCs) so I stopped. My fault really because I was taking big doses and not enough potassium to compensate. On the positive side, I did have good results on Evenity after all. My initial DXA scan was messed up as they scanned L2-L5 by accident. Once corrected, my gains were good. So I think you still have a good chance of gains on Evenity, just make sure you are getting a lot of calcium daily. I was taking in ~1500mg/day to help compensate for the lost urine calcium. Good luck!

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Replies to "Hi @ripley - I've had numerous tests but still no cause for my hypercalciuria. I tried..."

Hi @michaellavacot , it is very nice to hear that your dexa scan mistakes were caught and that you had nice improvements after evenity after all, with pre-existing hypercalciuria! If you don't mind, could you share your bmd% improvements from evenity therapy?

There was a thread on this forum discussing whether supplemental calcium should be stopped temporarily before 24hr urine calcium test. Do you get calcium from food source or supplements? If from supplements, do you see an impact of the amount of calcium from supplements on urine calcium test results? Thank you

Did you ever have your parathyroids checked out? (If you mentioned this before I missed it.) Thank you.