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Withdrawal from orgovyx: How long will fatigue and hot flashes last?

Prostate Cancer | Last Active: 3 days ago | Replies (28)
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@jeffmarc

Is your Gleason is below eight You might be able to stay off permanently, and are cured. Some people are cured, More than have reoccurrence. If above eight, I know a couple of people that have been permanently off, as an eight, but I do not recall of any higher. Everybody is so different.

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Replies to "Is your Gleason is below eight You might be able to stay off permanently, and are..."
heavyphil | @heavyphil | 6 days ago

I tend to agree with @jeffmarc in this one. And, of course your idea about 2nd and 3rd opinion. Did you ever have a Decipher score? That may give much more insight into the aggressiveness of your Gleason 9; not that a 9 isn’t more aggro just on face value, but the Decipher will tell you if it has a greater propensity to metastasize or not. If it IS more likely, then I think your RO would recommend staying on Orgovyx at least another 3-6 months. You don’t want to be Yo-Yo ing on and off ADT forever if you can avoid it.
BTW, what primary treatment did you receive? Surgery, radiation/cyberknife??

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