IgG levels up, no improvement in symptoms
Diagnosed with Hypogammaglobulinemia after 3 sets of labs showed same results.
IVIG one year out on Asceniv, IgG has increased in last set of bloodwork but symptoms have not improved. They had first 3-4 infusions. Dr wants IgG level to get to over 1000, now at 800 but
Migraines, body and joint pain, sinus, etc. worsening again.
Dosage of Asceniv just increased but only by 3 grams which I understand is too low, normally 5-10 at least.
Dr was worried about renal functions, appreciate real experiences etc
Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.
@525gooze You are worried about your current rheumatologist’s focus on your kidneys and not your other symptoms. Now you’re thinking of changing doctors. Here are links to 2 different organizations that keep records of doctors who specialize in autoimmune diseases.
https://rarediseases.info.nih.gov/. Genetic and Rare Diseases organization
https://rarediseases.org/. National Organization for Rare Disdeases
When you call one of these organizations, you might also ask if the doctor you plan to see is on their list.