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Adhesive Arachnoiditis & the Effects on Walking
Chronic Pain | Last Active: 2 hours ago | Replies (39)Comment receiving replies
Hi Lauren-Archie here… I just want you to know that you are heard— I hear you, your hopes and your desperate moments… many of us have been there. As an RN, you should be pretty good at being your best advocate. My experience is that doctors are not indifferent or arbitrary, they’re just busy. Your challenge is to get attention. There doesn’t seem to be any doubt that you are suffering, how can you be ignored. You speak the language— interspaces, foremen, pedicle, clumping, intrathecal space, dermatomes and so on. Use your expertise! I’m in your corner! Go for it.
Articulate what you want
Outline a plan to get there
Logically organize your team
List the outcomes you want
Get technology and treatment that will achieve your goals.
Good luck- Archie
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Thanks, Can't even get an appointment. here, in AZ, lots snowbirds. I am in pain management, but they have many restrictions on prescribing opiates I am now wearing a patch, Bupromorine, but i can hardly feel my legs &it's neuropathic pain. Doctors don't deal with AA, & as u said, very busy. I now have brain fog, sleep only 4 or 3 hrs a night. My experience as an RN, helps a little, but i only get steroids & valium. Pain, is unrelenting & i know my BP is up from this pain. Doctors like to deal with things they are familiar with, & where they can make a difference. They are largely ignorant about AA & not that interested in helping. U get dumped, & told to go to pain management. I know my experience, is not unique. Have tried for years to get a good treating doc for this condition. I used to be very active, & now i'm in bed2 2 hours a day. Sorry for typos, 3 hrs sleep & have severe pain down both arms