Something in my neck is popping out of place

Nope 🙁

Thank you for suggesting Eagle Syndrome as I also have vertigo and tinnitus along with this weird sporadic throat pain. I will definitely discuss this with my doctor.

@leosmom229 Hello, did you have any luck figuring out what the diagnosis is? I don't even know what is popping out, just that it is. Any info you might have will help.

Holy crap. This is wild I have been experiencing this exact thing for the past 6 years (I am 23M). I resonate with so many people sharing their experiences (thank you everyone I am so glad this thread exists!!!) I also do not have really any pain at all when it happens. It is only on my left side, the place where we can check our pulse as well. It is quite uncomfortable to talk or swallow when 'it' has fallen out of place. Freakkky! XD
Other random things I have that seem not connected:
-ADHD/anxiety/depression
-quite fruity in the queer community
-thats actaully all I can think of at the moment hahaha will post more later if I can think of any!

I am curious to know if anyone who has commented, is a violinist or violist by chance? Or maybe has a hobby or career which involves pressure or stress on the neck?

I saw someone else was a trombonist. I am a violinist of 14 years wanting to play professionally once I finish up my degree (relevant to this because the violin is placed RIGHT where this 'thing' is--the place where we take our pulse---and I find this interesting though it could be a coincidence!). I have had to stop playing due to a whole host of other random symptoms such as involuntary muscle jerks/jolts, subtle shakiness of hands (noticeable when drinking glass of water), finger joint weakness/instability weird fluid nerve down the head face and arm thingy, faintness when standing up/laughing etc...Currently have a doctor appointment lined up though I suspect Craniocervical instability (CCI), from playing violin so much that is has been causing the left neck tendon to weaken and become over-stretched, thus allowing for more movement in the C1-C2 spine bones which can trigger LOTS of weird symptoms.

(sorry for the long post its 10:15pm and my brain is gone :D)

ANYWAYS, I think this thing we are all mysteriously experiencing is somehow connected to these other things I'm experiencing? perhaps one triggered the other I am not very sure. Does this spark any ideas or connections with anyone else? I have truly no idea what Is actually happening, these are merely my thoughts and ideas. Might this thing we are all connecting over be caused due to an initial pressure/physical stress or trauma? I am so determined to help us all figure out what this is. I also had a doctor in the past completely disregard it saying "that's just not possible" or something similar to that. gah! I had at the time thought it was a lymph node slipping out of place or something.

With that, I am very interested in hearing what it was like when you guys FIRST experienced the 'thing' fall out of place?

For me it was after a 10 hour or so orchestral rehearsal for a camp in highschool back in 2018 (writing this currently on december 16th, 2024). I was playing violin when it happened and It felt quite uncomfortable but I don't remember any sort of sharpness to the discomfort. I broke into a fever and sweats instantly, though I popped it back in, and by the next morning I was good as normal, no fever. since then, throughout the years, like others, it will pop out at random sometimes a bunch of times in a day, sometimes once every 5 months. no fever, only a fever the first time it ever happened. its all seemingly random. Not even chatGPT knows whats happening! XD

Anyways sorry for the long post! I hope you are all as well as can be, and I can't wait to hear more of your stories and hopefully some doctor out there reading this will be able to figure it out! We believe in you! 🙂

I have read every last comment in this conversation. Here are a couple observations:

1. Get off your smartphones! This doesn't apply to everyone, but I think this is a part of what's going on for a lot of you. There's a lot of people here experiencing something associated with their left side. So, I thought about that. Most people are right handed. We hold our phones on our left side. Think about it.

2. There is more than one thing going on here. There are at least 2+ things going on. There's the Eagle Syndrome where you've got the bone that's too long. Wow that sounds painful. And then there's also what I (and others) have, where it feels like I have a whole tube going out of place. I forget what all else. But if you're reading this from your phone, check your posture! And if you're able to make lifestyle changes to improve your posture, do so.

About my experience. I've been experiencing this for the past year or more. I don't know anatomy, but I have to put what feels like the central tube in my throat back in place. "Dislocate" is a word that feels appropriate. I have to fidget with my throat to fix it many times a day! It doesn't hurt, but I do have a chronic sore throat (thrush) and untreated hypothyroid that doesn't respond as expected to the standard treatment. The doctors have given up on me.

I have EDS and already know that I would benefit by physical therapy that I can't afford and isn't covered by health insurance. I will now be taking my own advice and getting off the internet.

("Melting" as described above sounds like POTS, it stands for Postural Orthostatic Tachycardia Syndrome, and is often comorbid with EDS, and has become more common nowadays with covid.)

Rereading my above comment just now, I was tired and put something in the wrong place. These 2 paragraphs might make more sense as follows.

1. Get off your smartphones! This doesn't apply to everyone, but I think this is a part of what's going on for a lot of you. There's a lot of people here experiencing something associated with their left side. So, I thought about that. Most people are right handed. We hold our phones on our left side. Think about it.
But if you're reading this from your phone, check your posture! And if you're able to make lifestyle changes to improve your posture, do so.

2. There is more than one thing going on here. There are at least 2+ things going on. There's the Eagle Syndrome where you've got the bone that's too long. Wow that sounds painful. And then there's also what I (and others) have, where it feels like I have a whole tube going out of place. I forget what all else.

Finally, I’m not alone! This has happened to me as long as I can remember…and I am middle aged. Luckily, mine (left side) is pretty easy to pop back in. My doctor wasn’t worried since it was ongoing for many years. I’m getting a neck ultrasound for other reasons, so I guess it will be checked inadvertently. I was never too worried about and now that I know it’s not just me, even less so. Take care all.