I have Long Covid and vaccine injury. I have been receiving IVIg since 7/2022 with much improvement. I am willing to answer any questions regarding my several autoimmune conditions I developed post covid and mrna vaccine and subsequent treatment with IVIg and more recently adding in TNF inhibitor to help suppress my dysfunctional immune system.
I have been getting IvIg infusions for quite a while. I have had probably 25 of them. The literature says that IvIg will help neuropathy and mine is a little improved, but that is about all. It hasn’t helped me much.
My husband brought up IVIG on a visit to my Neurologist. He was familiar with is for other reasons. He looked up a few things about it while we were there and after some discussion we decided to give it a go. There is not much info on it for LC. But, that is doesn't mean you wont find some improvement with some of your symptoms from it. This was a few months ago. I am currently in a LC Study, so when that is complete We will decide. I don't know if I want to try it or not. I have been a human expirement for 4 years and my symptoms have moved around here and there, come come and go. I am still on meds, I can't stay focused for very long, short term memory is awful, I forget what I say, what I do, what I am doing, my body is fatigued, migraines, etc - Blah, blah - I understand the treatment is a bit of a grind at a few hours a day 5 days a week and then drops for a bit. I am not sure. But hearing some positive effects is very motivating! Good luck to those whom are experiencing relief big or small is excellent.
My neurologist ordered it. I have looked at the scientific literature and there is evidence that such infusions may help neuropathy, so we tried it. I have had maybe 25 infusions with very moderate reductions in neuropathy in my feet. His theory is that having neuropathy in my feet is what has caused me to lose my balance. I can barely walk and require a walker to be safe. So far, that symptom has not improved at all. Then I went to Cleveland Clinic and it has been an effort in deciding what I DO NOT HAVE. The doctors I saw there are a bit skeptical of LC.
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Who ordered your IVIG infusions?
Did your insurance cover it?
My ANA levels are WDL so of course no diagnosis except LC.
What do ANA and WDL mean?
My neurologist ordered it. My social security paid. I never had to pay anything.
I have been getting IvIg infusions for quite a while. I have had probably 25 of them. The literature says that IvIg will help neuropathy and mine is a little improved, but that is about all. It hasn’t helped me much.
My husband brought up IVIG on a visit to my Neurologist. He was familiar with is for other reasons. He looked up a few things about it while we were there and after some discussion we decided to give it a go. There is not much info on it for LC. But, that is doesn't mean you wont find some improvement with some of your symptoms from it. This was a few months ago. I am currently in a LC Study, so when that is complete We will decide. I don't know if I want to try it or not. I have been a human expirement for 4 years and my symptoms have moved around here and there, come come and go. I am still on meds, I can't stay focused for very long, short term memory is awful, I forget what I say, what I do, what I am doing, my body is fatigued, migraines, etc - Blah, blah - I understand the treatment is a bit of a grind at a few hours a day 5 days a week and then drops for a bit. I am not sure. But hearing some positive effects is very motivating! Good luck to those whom are experiencing relief big or small is excellent.
It was a physician friend actually.
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1 ReactionMy neurologist ordered it. I have looked at the scientific literature and there is evidence that such infusions may help neuropathy, so we tried it. I have had maybe 25 infusions with very moderate reductions in neuropathy in my feet. His theory is that having neuropathy in my feet is what has caused me to lose my balance. I can barely walk and require a walker to be safe. So far, that symptom has not improved at all. Then I went to Cleveland Clinic and it has been an effort in deciding what I DO NOT HAVE. The doctors I saw there are a bit skeptical of LC.