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DiscussionAnyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 3 days ago | Replies (807)Comment receiving replies
Replies to "Thank you @boatsforllife for very clearly describing your symptoms which are almost identical to mine and..."
@marigold13 and @mpjg - you are both very welcome. I've found, as you both also seem to have found, that this forum is a great place to talk to people who have similar, but perhaps not identical experiences. Even though it doesn't cure anything, it can sure make it easier to cope somehow. When I was finally diagnosed with oHCM and connected with the forum, there was a validation that I wasn't just making it up or being lazy. Same thing for some of the weirder symptoms - like feeling crappy when I ate - hey, it's not just me! We all need to learn to lean on each other sometimes and to have the grace to let others lean on us when we can offer that kind of support. I wish you both well in dealing with your different situations.
And I will wish you and all the rest of our forum brothers and sisters a happy holiday season. Be healthy, be happy, be safe.