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@mwtexas

I will keep you posted on what happens. I think I'm just so used to being dismissed by doctors here that in the back of my head I keep thinking that the same will happen this time. The past year I've hit brick wall after brick wall and I feel like I'm at the end of my rope if no one can figure this out once
and for all. It's so distressing to be able to feel this mass with my own hands and see that it continues to get larger, and there's nothing I can do about it. I'm not scared about what it could be, but I'm scared of them not finding the answer. Thank you for all your support and encouragement. It means a lot. 🙂

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Replies to "I will keep you posted on what happens. I think I'm just so used to being..."

I really feel you’re in a better clinical setting with your new doctor. But when you’ve been dismissed so much by your doctors in the past, it’s really difficult to rebuild the faith and confidence.
Hopefully you won’t have to this time, but it is really ok to be the squeaky wheel and to keep advocating for yourself. It does sound like your PCP, with the referral to specialists, is also in your court if you need backup.

What might be helpful for this consultation appointment is to have a list of questions available that you’d like answered.
You might ask about the diagnosis, what treatments are available, will I need surgery, what’s my recovery time, etc. Ask if you have followup questions will you be able to contact your doctor or NP through the portal.
Don’t be afraid to ask those questions. I think most doctors appreciate patient’s wanting to learn about their condition with having prepared questions. It helps to keep the conversation on task and utilize those limited appointment times wisely.
My doctors were very responsive to my list of items I needed to discuss. We worked as a team for my health. So best of luck to you on your appointment and I’ll be here if you have anything you’d like to discuss. ☺️

@mwtexas, I thought I'd check in. Any update? Have you learned more in the past couple of weeks?