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DiscussionImmunohistochemistry (IHC) results: Scared I may have lymphoma
Blood Cancers & Disorders | Last Active: 5 days ago | Replies (14)Comment receiving replies
Replies to "I will keep you posted on what happens. I think I'm just so used to being..."
@mwtexas, I thought I'd check in. Any update? Have you learned more in the past couple of weeks?
I really feel you’re in a better clinical setting with your new doctor. But when you’ve been dismissed so much by your doctors in the past, it’s really difficult to rebuild the faith and confidence.
Hopefully you won’t have to this time, but it is really ok to be the squeaky wheel and to keep advocating for yourself. It does sound like your PCP, with the referral to specialists, is also in your court if you need backup.
What might be helpful for this consultation appointment is to have a list of questions available that you’d like answered.
You might ask about the diagnosis, what treatments are available, will I need surgery, what’s my recovery time, etc. Ask if you have followup questions will you be able to contact your doctor or NP through the portal.
Don’t be afraid to ask those questions. I think most doctors appreciate patient’s wanting to learn about their condition with having prepared questions. It helps to keep the conversation on task and utilize those limited appointment times wisely.
My doctors were very responsive to my list of items I needed to discuss. We worked as a team for my health. So best of luck to you on your appointment and I’ll be here if you have anything you’d like to discuss. ☺️