As another Sjogren's sufferer who recently confirmed that my SFN is caused by Sjogren's I am glad to see more talk about this disease. I suspect that it is much more prevalent than is realised, especialy within the autoimmune community. Take a hard look at your symptoms and talk to your rheumatologist. You probably have one.
Recently diagnosed with sjogrens after 7 years almost. Started out with abdominal pain then dry eyes, dry mouth, sores in mouth that might be related to my lichen planus , joint pain all over, ear ache,.not sure if ear has any relationship. Recently a dr prescribed plaquenel will be on that soon.<br><br><br>
I tried plaquinil and it made everything taste like cardboard. I quickly lost 50 pounds without trying and became very dehydrated. Aside from being too weak to stand, and loving the weight loss, the medication did nothing for me.
I tried plaquinil and it made everything taste like cardboard. I quickly lost 50 pounds without trying and became very dehydrated. Aside from being too weak to stand, and loving the weight loss, the medication did nothing for me.
I totally understand. That medication was one of the first meds that I was put on and I could not tolerate it. I’ve tried many with no results and I have been on several that helped for a period of time then stopped but worked well for a period of time. The very good news is there are many medications now so get a great rheumatologist and hopefully one that listens and don’t worry about this medication don’t look back. Be your own advocate don’t doubt yourself. No one knows you..but you. Please know this group cares. Because we do.
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As another Sjogren's sufferer who recently confirmed that my SFN is caused by Sjogren's I am glad to see more talk about this disease. I suspect that it is much more prevalent than is realised, especialy within the autoimmune community. Take a hard look at your symptoms and talk to your rheumatologist. You probably have one.
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1 ReactionI tried plaquinil and it made everything taste like cardboard. I quickly lost 50 pounds without trying and became very dehydrated. Aside from being too weak to stand, and loving the weight loss, the medication did nothing for me.
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Like -
Helpful -
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1 ReactionI totally understand. That medication was one of the first meds that I was put on and I could not tolerate it. I’ve tried many with no results and I have been on several that helped for a period of time then stopped but worked well for a period of time. The very good news is there are many medications now so get a great rheumatologist and hopefully one that listens and don’t worry about this medication don’t look back. Be your own advocate don’t doubt yourself. No one knows you..but you. Please know this group cares. Because we do.