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Peripheral Neuropathy & Conversation Fatigue?
Neuropathy | Last Active: 2 days ago | Replies (35)Comment receiving replies
Ed - I was at my husband’s Pickleball Club holiday party this weekend and seated by the club president who asked… he couldn’t comprehend how I could not be fixed, how an athlete lost their leg use like I did. I got a very long story how I needed to go to Mayo, how they fixed some very complicated disease or cancer of a relative. It reminded me that “Have you gone to Mayo” is a popular bit of advice, and I think if there’s a chance for help Mayo would be the one to provide it. But as you know, some things are just not solveable yet, even by the best. So as you say. We Keep Moving the best we can.
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Debbie - I can personally guarantee you that Mayo can't fix all things....I am proof of that. When I went to Mayo in Feb 2020, I did see two neurologists in MN who told me what I have but no idea why. These two neuro docs specialize in PN. Of course, that is my case, and not all cases are the same. I went through a number of tests that 3 other teaching hospitals never did. You are right, not all illnesses have a reason, answer or a cure. We with PN know that well.
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Hi Debbie ~
I have a good friend with whom I used to work, and often when someone would ask about another's wellbeing, they'd respond not with a word of empathy or encouragement, but with a litany of their own medical woes or treatments or outcomes, or even those they'd heard of. We named this: "How can I make this story my own?" and it always made us grin.
Happy Monday,
Barb