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@loribmt

Oh gosh, that’s horrible to feel left in the dark like that! It’s incredibly frustrating to have your doctor be dismissive. I went through similar with my PCP in my early stages of AML! We KNOW when we’re not feeling well and we shouldn’t have to beg to be treated with respect.

It’s a relief your doctor was able to refer you to a larger hospital. The ball is at least rolling in your favor there! It’s not unusual to have a lag time between results reported in the portal and the follow-up appt. It looks like you have that appt in a couple of days. I think you’ll know more after that appointment.
Having a strong medical background can be helpful but also arms you with too much information, right? 😉 Please try not to do too much searching before you even know the diagnosis. That can lead you down rabbit holes on the internet that may not even apply to you. So, wait for your consultation on Thursday. Please let me know what you find out.
Do you have family with you so you’re not having to drive and attend appointments on your own?

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Replies to "Oh gosh, that’s horrible to feel left in the dark like that! It’s incredibly frustrating to..."

I don't really have anyone I can travel with for those appointments but I do have a close friend I can talk to and keep in touch with this whole time.

I will keep you posted on what happens. I think I'm just so used to being dismissed by doctors here that in the back of my head I keep thinking that the same will happen this time. The past year I've hit brick wall after brick wall and I feel like I'm at the end of my rope if no one can figure this out once
and for all. It's so distressing to be able to feel this mass with my own hands and see that it continues to get larger, and there's nothing I can do about it. I'm not scared about what it could be, but I'm scared of them not finding the answer. Thank you for all your support and encouragement. It means a lot. 🙂