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Immunohistochemistry (IHC) results: Scared I may have lymphoma
Blood Cancers & Disorders | Last Active: 5 days ago | Replies (14)Comment receiving replies
It's been a year long journey of symptoms such as extreme fatigue, swollen lymph nodes, chills, gi issues, shortness of breath and dizziness, among things. I also developed a large mass that appears to be located on or around the pancreas but the imaging so far has been inconclusive. I have been dismissed by most of the
doctors I have seen in my town so that's why my PCP referred me up to a larger hospital in another city. The surgeon there performed a laparoscopy and removed one of the enlarged mesenteric lymph nodes for biopsy. I have a follow-up scheduled for this Thursday but the results of the biopsy came back last Monday. I'm hoping that during this time he is ordering additional pathology tests on it based on the initial results but I feel left in the dark and it's horrible. I have a strong medical background so I know what all these tests are for but so far I don't have a definite diagnosis.
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Oh gosh, that’s horrible to feel left in the dark like that! It’s incredibly frustrating to have your doctor be dismissive. I went through similar with my PCP in my early stages of AML! We KNOW when we’re not feeling well and we shouldn’t have to beg to be treated with respect.
It’s a relief your doctor was able to refer you to a larger hospital. The ball is at least rolling in your favor there! It’s not unusual to have a lag time between results reported in the portal and the follow-up appt. It looks like you have that appt in a couple of days. I think you’ll know more after that appointment.
Having a strong medical background can be helpful but also arms you with too much information, right? 😉 Please try not to do too much searching before you even know the diagnosis. That can lead you down rabbit holes on the internet that may not even apply to you. So, wait for your consultation on Thursday. Please let me know what you find out.
Do you have family with you so you’re not having to drive and attend appointments on your own?