← Return to Immunohistochemistry (IHC) results: Scared I may have lymphoma

Discussion
Comment receiving replies
@loribmt

I’m sure you’re on pins and needles waiting for a definitive diagnosis so you can get on with life! Being able to have access to a larger hospital usually gives you the opportunity for more state of the art diagnostic equipment and specialists. So I hope you get your answers soon.

You must have just gotten the biopsy results on the portal. This is usually followed up with a consultation. Or the doctor may read the results and request imaging or further tests before that consultation appointment.

Non Hodgkin’s lymphoma is a broad group of lymphomas so your doctor will want to zero in on your specific type before going ahead with a diagnosis and treatment plan.

We have quite a few NHL members in the forum and when you get your diagnosis I’d be happy to connect you! It can help to talk with others who are going through the same medical mystery tour! 😉 I’ve been there myself with a different blood cancer. We are blessed to live in an age where we have treatment options with positive outcomes.

Mayo Clinic has a good article on NHL that you may want to read.
https://www.mayoclinic.org/diseases-conditions/non-hodgkins-lymphoma/symptoms-causes/syc-20375680#:~:text=Non-Hodgkin%20lymphoma%20happens%20when%20germ-fighting%20cells%20in%20the,lymphomas.%20There%20are%20many%20subtypes%20in%20this%20group.
If you don’t mind sharing, what were your symptoms leading up to your testing? Do you have a consultation scheduled?

Jump to this post


Replies to "I’m sure you’re on pins and needles waiting for a definitive diagnosis so you can get..."

It's been a year long journey of symptoms such as extreme fatigue, swollen lymph nodes, chills, gi issues, shortness of breath and dizziness, among things. I also developed a large mass that appears to be located on or around the pancreas but the imaging so far has been inconclusive. I have been dismissed by most of the
doctors I have seen in my town so that's why my PCP referred me up to a larger hospital in another city. The surgeon there performed a laparoscopy and removed one of the enlarged mesenteric lymph nodes for biopsy. I have a follow-up scheduled for this Thursday but the results of the biopsy came back last Monday. I'm hoping that during this time he is ordering additional pathology tests on it based on the initial results but I feel left in the dark and it's horrible. I have a strong medical background so I know what all these tests are for but so far I don't have a definite diagnosis.