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Essential Thrombocythemia: Making treatment decisions

Blood Cancers & Disorders | Last Active: Apr 2 9:38am | Replies (214)
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@jag11

My platelets are continually being depleted, Having transfusions at least once a week. 8 to 44k range I have been diagnosed with PNH, am currently on Ultromiris, Promacta, and Nplate, so far, no changes. Anybody dealing with PNH, any info would be appreciated.

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Replies to "My platelets are continually being depleted, Having transfusions at least once a week. 8 to 44k..."
Colleen Young, Connect Director | @colleenyoung | Dec 22, 2024

@jag11, for others reading your post I thought I would spell out PNH. PNH stands for paroxysmal nocturnal hemoglobinuria, a condition that causes red blood cells to be destroyed by the immune system.

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