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Cryoglobulinemia: Want to connect

Blood Cancers & Disorders | Last Active: Dec 9 12:36am | Replies (31)

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@colleenyoung

@denniscschultz, I'm adding my welcome. I moved your questions about cryoglobulinemia, what it is like, what treatments are available and potential side effects, etc. to this existing discussion:
- Cryoglobulinemia: Want to connect https://connect.mayoclinic.org/discussion/cryoglobenemia/

I did this so you can read previous posts and connect with other members like @zebra2022 @marinella @pepin31219 @modens @slward1951 who have experience with cryoglobulinemia. As you know this blood condition may cause atypical proteins in the blood to clump together at body temperatures below 98.6 F (37 C). Treatments will vary with the underlying cause of the condition.

Dennis, is this a new diagnosis for you? What treatment is being suggested?

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Replies to "@denniscschultz, I'm adding my welcome. I moved your questions about cryoglobulinemia, what it is like, what..."

Yes, this is a brand new diagnosis for me. In April 2021, I was diagnosed with CHF , 10% EF, COPD after smoking 2-3 packs of cigarettes for over 31 years, Stage 4 CKD, central sleep apnea, and existing type 2 diabetes after having covid twice in 2020. Both times i had it really severe and was off work for 5 weeks each time. I have cryoglobulinemia but the doctors haven't found an underlining condition such as multiple myeloma, lupus, or another type of autoimmune disease. Which most cases have a secondary disease. Thank you for reaching out to me regarding this resource. I look forward to participating in this group.