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Fibromyalgia pain: Let's connect
Fibromyalgia | Last Active: May 9 4:21pm | Replies (1332)Comment receiving replies
I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from the fever and was left with the pain I had from the flu. (I suppose thats why i think it was brought on by the flu.)
I also take pain medication, but because I only have one kidney (lost one in 1999 because of a benign oncocytoma tumor) , my nephrologist said not to take any anti inflammatory drugs. Ibuprofen was the only thing that helped my pain so I was told by a general practitioner (before my kidney tumor) I could take up to 6 a day so that's what I took for too many 'years.' One of my surgeons that removed the kidney said that could have been the cause of the tumor, so, after that long explanation, my advise to you...just be careful about your kidneys and liver. I was told some meds filter through one or the other.
After that scare and the recom. to watch what drugs i took, i have ended up taking Methadone (an opiod drug). It works better for me than the one i was on before (Vicoden). I don't get the highs I used to get from the Vicoden and it lasts longer.
Replies to "I was diagnosed in 1991 after suffering from a flu virus. Its like I recovered from..."
Hello @robbinr. I was unable to find anyone else who has talked about this experience on Connect. However, with a little research, I don't think your situation is unique. Although brief, here is an article from PubMed, https://www.ncbi.nlm.nih.gov/pubmed/26259883.
<br><br><br><br><br><br><br><br>Wow, thanks Justin,<br>That is amazing to find such detailed a survey.<br>Regards,<br>Robbin<br> <br><br><br>
I wish I could take all of the credit, but we have to thank @colleenyoung for the heavy lifting.
Does anyone have any idea how to get rid ar at least alleviate inflammation? I feel like my body is burning itself up from inside. <br>
The acupuncture I've been doing since early January also alleviates my inflammation. The term they use is actually called internal "heat" that they are helping the body release.
<br><br><br><br><br><br><br><br>The use of Moxa is very effective for inflammation when getting acupuncture. Thanks for the reminder on how effective acupuncture is! Robbinr<br> <br><br><br>
Wanda, after all these years of FM suffering, and all the different kinds of pain, I have never experienced that feeling you described of "burning from the inside."
Thats a new description I've never heard or read about. I have pain some days it seems everwhere, and now I have arthritis which just adds to it. I didnt think it was possible to have more chronic pain then I already had with the FM. Ugh!!
Everyone else. ...
I did find a doctor in Houston (in my earlier years with this FM pain) that actually had been researching and trying different things with patients trying to find a cure. She had me giving myself injections of glutathione. It really helped a lot and I thought I was cured so I stopped doing it because it is a little pricey and the trips to Houston from where i live is a 5 hour drive, but back then i was much younger and i was willing to do/try anything. After a few years of much reduced pain; pain i could live with, it all came back (wuth a vengeance) when my only child died in 2013. I had to retire in 2014. The grief and the pain was too much.
The doctor's name (and I had found some of her studies online if you're interested in checking her out, is Patricia Salvato, M.D., Internal Medicine. I still have her address, phone # if anyone is interested. This was a long time ago. She may be retired by now. I haven't researched her in a long time.
Good luck, everyone. Bless you.
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<br><br><br><br><br><br><br><br>I was diagnosed with Fibro in 1995 after spending many years wondering why I was so tired and hurt all over.<br>Recently, I had a really long flare of pain, but as it started to subside I felt like all my joints were sore and swollen.<br>As the swelling started to recede, I have had a couple of weeks of bladder urgency (no pain). I can’t go an hour without a bathroom.<br>Has anyone else had something like that happen?<br>Robbinr<br> <br><br><br>