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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 12 hours ago | Replies (854)
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@lorkish

I was diagnosed in 2023. Bone Marrow biopsy showed MYD88 gene mutation thus diagnosed with Waldenstrom’s Macroglobulinemia. Am still on “watch and wait.” Doctors believe covid shot caused it all.

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Replies to "I was diagnosed in 2023. Bone Marrow biopsy showed MYD88 gene mutation thus diagnosed with Waldenstrom’s..."
2121 | @leslie2121 | Dec 8 3:33pm

Hello:
I have wondered if the covid vaccines triggered my mgus in 2021, after 2 moderna vaccines, followed by 2 boosters. I also developed proteinuria about the same time which resolved completely a few months after the last booster in 2022.
I have no evidence but am very curious about your doctor’s thinking on the possible connection.
Thanks and best to you.

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4kleo | @4kleo | 6 days ago

I got sick after my last Covid vaccine, which was Pfizer. All the others had been Moderna and I developed symptoms and I have MGUS currently. I’m on wait six months for another blood and CAT scan and possible bone marrow biopsy. I am convinced the vaccine made me ill. I am so sorry that you are going through this.

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