I am now 81 years old and I have been suffering with different degrees of PN for the past 35 years. The numbness and mild pain I had been experiencing began to get severe enough that I sought the help of a Neurologist in 2003 and after a neurological exam I received my first PN diagnosis. About 5 years ago my symptoms began to dramatically increase in intensity and I was lucky enough to accidentally find another Neurologist who was able to diagnose my idiopathic small fiber polyneuropathy and autonomic neuropathy via skin biopsy but he also told me there was very little if anything that could be done to treat the problem other that offering a few types of pain meds. I had been taking Gabapentin ever since my 2003 PN diagnosis. My symptoms are very similar to what others have shared on this website. Pain, fatigue, very poor balance issues, weakness, itching, very low physical stamina, lightheadedness, digestion problems and occasionally a degree of breathing difficulties.
I have constantly searched for help and guidance on how to deal with this evidentially incurable problem and other than this website found very little of real use.
I am writing this to share some of my story but more importantly for potential readers/sufferers to pass along to a link to a website that has more helpful information than any place I have yet found. When printed this is 30 pages long to give you an idea the degree of detail that is covered. The site is: https://suzycohen.com/articles/small-fiber-neuropathy-its-different/
My best to you/us all.