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Transplant anti-rejection medications. What's your advice?
Transplants | Last Active: 17 hours ago | Replies (371)Comment receiving replies
Thank you, Shannon. I found this post from 2020: I was taken off most of my anti-rejection drugs fairly quickly. Within 4 months I was taken off cellcept and prednisone. Then my tracilomus was reduced to 1mg every 12 hours.
I am two years in, and still take 5 mg prednisone once a day, 500 mg mycophenolate (cellcept) twice a day, and 3 mg tacrolimus twice a day with a 5-6 ng/ml level. What clinically indicated a reduction like this and yours? What prednisone dose were you taking, what is your tacrolimus level before and after the reduction, and what were your side effects leading to the reduction?
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Well... I kinda kicked and screened to get off pred, it causes high blood sugars and glaucoma etc. They reluctantly weaned me to 2.5 . saying its a low dose, I was scared about the everyday threshold of it building in my symptom over the years.
As I completely stopped after a wk or 2 of 2.5 mg, I felt no difference just better with time. Today my prograf level is 3. However I am almost 23 yrs out from Pancreas tx and Kidney has been over 10 yrs now.
I would love to know if there has been any indications if at at a certain age and duration of taking these drugs every day when we can stop them before they cause more damage than good.