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Transplant anti-rejection medications. What's your advice?

Transplants | Last Active: 17 hours ago | Replies (371)
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@22shannon

Hi,
I had a kidney and pancreas ( separate times). I was on prednisone for 2 yrs then weaned . When I was being taken off pred they up my cellcept, that was harsh on my stomach, too toxic for me, then they lowered the cellcept. Now I am 1 mg trac twice a day and 500cellcept twice a day. I also would like to find studies on how much of these a person should take everyday of their life . If there is certain lab work to look at to see if its safe to lower one or the other. Wishing you luck to get off pred! That one scared me to take rest of my life. Temporary makes sense to me

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Replies to "Hi, I had a kidney and pancreas ( separate times). I was on prednisone for 2..."
taco | @taco | Dec 8 2:00pm

Thank you, Shannon. I found this post from 2020: I was taken off most of my anti-rejection drugs fairly quickly. Within 4 months I was taken off cellcept and prednisone. Then my tracilomus was reduced to 1mg every 12 hours.

I am two years in, and still take 5 mg prednisone once a day, 500 mg mycophenolate (cellcept) twice a day, and 3 mg tacrolimus twice a day with a 5-6 ng/ml level. What clinically indicated a reduction like this and yours? What prednisone dose were you taking, what is your tacrolimus level before and after the reduction, and what were your side effects leading to the reduction?

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