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@joycehocm

Hi Kate - our conversation is really helpful. The only symptoms that I have are breathlessness and occasional fatigue that come on suddenly after I have been running around all day. I am glad that you are feeling a lot better. Have you been on calcium channel blockers and what was that like? side effects? My doc wants to skip over beta blockers because they are, apparently, correlated with depression which I have had on and off all my life and do not want to fool around with - my meds for that are now perfect. It is good to hear about your experience with Camzyos - scary symptoms but I won't be as alarmed if they happen. The REMS team will be on top of that, I hope. I don't know what me gradient is - will ask doc when I email him later. What gradient is good? bad? range? Thanks so much! Joyce

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Replies to "Hi Kate - our conversation is really helpful. The only symptoms that I have are breathlessness..."

Hi Joyce, sorry for late reply. Your gradient is the rate at which your blood goes out of your left ventricle. Mine got up to 111 on valsalva (movement) it should be around 1 - 10 I believe. The
Obstruction interferes with the outflow of blood. Beta blockers made me feel terrible as I had a low pulse anyway. Since the operation I now have high Blood pressure and have gone into Atrial fibrillation which I didn’t have before, bp is constantly 175/110 yes too high I know and trying to sort it out now. I am 14 weeks out of surgery and energy just coming back and started cardio rehab last week. Keep me posted how are doing? Katie