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@suzi1

I was diagnosed on December 2020 and suffered horribly debilitating headaches, no energy, no taste, no smell, and memory loss. I have had the low energy off and on and the headaches seem to happen when I’m very stressed anymore. My friend/co-worker & I contracted it at the same time and helped each other with the memory loss. We came up with looking at social media, checking our phones (Siri was on over-time), calendars, to check events, dates, & timelines. Asking someone discretely, as not to alert them that you couldn’t remember. Writing a lot in a journal and calling each other when we just couldn’t remember to support one another. It was tough but eventually got better. I still have the low energy off & on and had one of those headaches last week. So I understand how you are feeling and yes, we should count our blessings.

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Replies to "I was diagnosed on December 2020 and suffered horribly debilitating headaches, no energy, no taste, no..."

I read your post and wondered if you got your taste/smell back. I lost mine in December of 2022 and still don’t have either back. I’ve also had 7 Stellate Ganglion Block Injections and they haven’t worked, which in case you weren’t aware, are suppose to bring back taste/smell. They did, however, help with my PTSD (anxiety). I feel more calm. I know it could be worse, but if anybody were to say that to me, I’d have a few not so nice words to say to them!! It’s been awful to not have any foods to look forward to eating when you can’t taste or smell them.