Sjogren’s Syndrome – Introduce yourself and meet others

Here’s some of my symptoms…each addressed in different ways..
Thyroid problems
Dry eyes that burn, itch, or feel gritty, terrible pain at times
Dry mouth, mouth sores, dental decay, difficulty , speech, taste and dentures
Dry throat, lips, skin
Peeling lips
Headaches
Anxiety
Dryness in my nose
A change in taste or smell
Trouble swallowing at times
shortness of breath
Feeling tired
Trouble concentrating or remembering things
Swelling, pain, and stiffness in your joints
Heartburn, a sensation of burning that moves from your stomach to your chest
Numbness or tingling in some parts of your body
False teeth

I am 57 years old female. Found out I had Sjorgrens when I was 25 year old. I have been on Plaquenil 200 mg for 18 years. The last 6 months now, I take LDN, 3 mg at night. This has helped alot with the inflammation. I helps for the body aches. I feel so much better. I do not ache anymore. I also try to eat healthy, which has made a huge difference. Yes, I do have dental problems from severe dry mouth and severe drys eyes. I use a humidifier at night. I use Corena Care Rest , self heating eye mask ( 30 individual eye masks). I also use a pilocarpine HCL 5 mg Lollipop. For dry mouth at night.

Welcome @bboomer, Thanks for sharing what has helped you manage your Sjogren's symptoms. It really helps members that are struggling and especially those who are new to the condition. If you don't mind me asking, what brought you to Connect?

My husband had a major injury last January. Shattered his pelvis. Dr. Yuan and his team fixed Craig up. Over the follow ups visits, I ran across Mayo Clinic Connect. It really helps to connect with other people that have similar problems.

I am 57 years old female. Found out I had Sjorgrens when I was 25 year old. I have been on Plaquenil 200 mg for 18 years. The last 6 months now, I take LDN, 3 mg at night. This has helped alot with the inflammation. I helps for the body aches. I feel so much better. I do not ache anymore. I also try to eat healthy, which has made a huge difference. Yes, I do have dental problems from severe dry mouth and severe drys eyes. I use a humidifier at night. I use Corena Care Rest , self heating eye mask ( 30 individual eye masks). I also use a pilocarpine HCL 5 mg Lollipop. For dry mouth at night.

First let me say thanx for your input. I’m sorry what is LDN? pilocarphine HCL? ..I too where a mask… it’s cold.
I’m gluten free, dairy free, and sugar free.

My daughter and I both have Sjogren’s and she was just diagnosed at age 29. We are on Plaquenil and much of the symptomatic relief as listed above including nasal sprays, mouth care, Epicerum for skin care and Cequa and Miebo eye drops. A great resource is the Sjogren’s Foundation. Lots of info, virtual programs and experts
Here is an upcoming virtual session for members:
“The Sjögren's Foundation invites you to a virtual
Members-only Annual Update via Zoom on Wednesday, December 11 at 4:00pm EST.”
You may want to check them out. Early intervention and care helps. Sending you the very best wishes for improved health.

This is great inforamtion, thank you!! I definitely need to get involved in this!