I am also noticing huge hair loss. I'm afraid I will also need a wig in the future if it keeps going as I'm extremely thin now on top and you can see my scalp.
What I find interesting is every single time I do wash my hair it sends me into a complete flare.
I used to wash my hair everyday, now 2 times a week because I can't deal with the after effect. Somehow I believe when washing my hair it stimulates the nerve fibers.
But, yes definitely a lot of hair loss here as well. 😞 I can relate to looking in the mirror and thinking how much this has aged me in a short time.