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Transplant anti-rejection medications. What's your advice?

Transplants | Last Active: 17 hours ago | Replies (371)

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@taco

Thank you. Yes, I have had side effects since my transplant two years ago, but my transplant team does not want to change my regimen saying it is better to protect my kidney but citing no studies or reasoning. This is up to them, but I am curious after reading about the low Tacrolimus dosages and eliminating prednisone here. Can anyone cite any studies? Also, what kind of side effects are people having leading to the switch?

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Replies to "Thank you. Yes, I have had side effects since my transplant two years ago, but my..."

Hi,
I had a kidney and pancreas ( separate times). I was on prednisone for 2 yrs then weaned . When I was being taken off pred they up my cellcept, that was harsh on my stomach, too toxic for me, then they lowered the cellcept. Now I am 1 mg trac twice a day and 500cellcept twice a day. I also would like to find studies on how much of these a person should take everyday of their life . If there is certain lab work to look at to see if its safe to lower one or the other. Wishing you luck to get off pred! That one scared me to take rest of my life. Temporary makes sense to me