I see you posted 1 year ago. I’ve gotten a temporary diagnosis of inclusion body myositis but haven’t yet had the muscle biopsy.
I did get a negative result for Anti-cN-1A(NY5c1A) which I’m told is positive in 80% of IBM cases.
I’d appreciate hearing from anyone with views on IBM and alternative diagnosis give exercise is the only prescription available for IBM that I’m aware.
Currently I’m still walking and doing stairs albeit very carfully