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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 3 days ago | Replies (807)
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@joycehocm

Thanks so much. I am 73 and new to all of this although it appears that I have had HOCM all my life! It sounds like the verapamil helped you for a long time and that you tolerated it well - anything else I should know about it? Also, when you say that the Camzyos didn't suit you - can you tell me a bit more about what you mean? Thank you again.

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Replies to "Thanks so much. I am 73 and new to all of this although it appears that..."
katiekins | @katiekins | Dec 8 10:44am

Yes likewise, 74 and apparently had HOCM a long time and ur came to light in the gym aged 57 (as I overdid it) and then symptoms began but with meds was fine. I only did this operation (for mitral valve regurgitation) upon advice of surgeon. Hated everything about it at the beginning but tomorrow week 14, am beginning to feel alot stronger. Who knows…. Camzyos is a wonder drug for some but my real problem was the mitral valve hence the operation. Camzyos comes with a warning and may not suit everyone (not trying to put you off but felt amazing for the first week but then headaches started, jaw ache and blurred vision just was not for me. Di you have symptoms? Are you in meds? It’s scary in the beginning but don’t be. Do you know what your gradient is?
Kate

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