What are we looking at?

Posted by lovemymom1 @lovemymom1, Sep 17, 2024

Hello, I am new here and needing some insight, hope in what we are up against.
My Mom who is 79 and otherwise healthy went to the ER for some abdominal pain. They did extensive test including MRI, CT with and w/o contract that revealed a mass on the pancrease and on the liver. The labs that were done the pancreas, ( which I am unsure what it is called) was very high, if I am correct normal is up to 135 and hers was in the mid 400's. She has had on and off cloudy/dark urine and has lost 20 pounds. All of this started about a month and a half ago.
She just had an upper endoscopy to get biopsies but the DR is pretty certain that it is cancer. She is scheduled to have a stent placed. So currently we are awaiting results but in the mean time my Mom has no appetite, she tries to eat light things but it's hard, she is getting weak and fatigued.
I have no idea where we are on this but is there hope for her? Looking up information it doesn't look good and I am so scared. Any advice or information is greatly appreciated. Thank you

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@lovemymom1

Oh wow I'm so sorry. Yes the health care is just so saturated right now an appointments are so hard to get into. We have a friend whose sister was just diagnosed with ALS and from the onset of her symptoms to her diagnosis it took 6 months for her to get into be seen. How was your brother doing today?

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My brother had his Whipple on August 16 he was at UCI hospital for three weeks then he’s been in kindred Hospital it’s a small hospital he is still there he will be released this week it’s been tough he still has the G-tube in for bile drainage from the stomach and he cannot eat much and he’s being fed through a feeding tube he’s lost all his strength from being bedridden all this time so not being able to eat and not getting up with physical therapy he’s in a very weak state and he is supposed to start chemo but we haven’t been able to see the oncologist or anything because he’s been in this place and he’s too weak for chemo because he has lost a lot of weight and he can’t walk

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Oh wow, I'm so very sorry about your brother, I sure hope and pray he can get enough strength for chemo. This disease is so awful. Thank you for sharing.

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I wanted to give an update on my Mom. Since being on here she gradually has got weaker and barely eats anything, just slowly declinging. She had 4th chemo treatment Wednesday day before Thanksgiving. The previous night she had become very weak and could barely walk. Next morning she seemed better so they went to chemo, she as feeling shaky but her oncologist said to proceed with chemo so she did. After her treatment she felt really bad and her blood pressure went dangerously low, was sent to ER where ultimatley she was admitted into ICU. She went into septic shock and had an infection in her blood, (they think from the bile ducts but aren't clear). She seemed like she was doing ok Thursday - Saturday in the hospital then Sunday she started sleeping so much and she couldn't even barley get up. She was discharged on Tuesday and has been home. She sleeps the majority of the day and barely eats anything, maybe a couple tbls of yogurt and a few sips of ensure. The oncologist said she can't do chemo anymore because the cancer has now spread to her bones, so it's not working, she is too weak and it is taking a toll on her so she will be moved to hospice care. The palliative nurse said it is possible that once the chemo leaves her system she may feel better and not sleep as much, I don't know it's all happening so fast. It has been so hard to wrap my head around us being with them everything normal and fine to finding out she has this awful disease and 3 months later already on hospice. It has been so hard but I wanted to give you an update. Thank you

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I am so sad to read this. Can you remind us of your Mom’s name and where she is being cared for?
This is a very cruel disease.
I would like to pray for both of you💜

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@gamaryanne

I am so sad to read this. Can you remind us of your Mom’s name and where she is being cared for?
This is a very cruel disease.
I would like to pray for both of you💜

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Thank you I really appreciate the prayers. Her name is Bev.

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@lovemymom1

Thank you I really appreciate the prayers. Her name is Bev.

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Prayers for Bev. It is such a cruel disease. Hugs @lovmymom1

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@wf0439

Prayers for Bev. It is such a cruel disease. Hugs @lovmymom1

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Thank you very much! It is and I am having a hard time just wrapping my head around the timeline it has taken. Being fine no issues doing things with them, then the moment she told us it all went down hill fast. I'm just praying she doesn't suffer. All the prayers are welcomed

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@lovemymom1

Thank you very much! It is and I am having a hard time just wrapping my head around the timeline it has taken. Being fine no issues doing things with them, then the moment she told us it all went down hill fast. I'm just praying she doesn't suffer. All the prayers are welcomed

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@lovemymom1
I’m so sorry to hear of your mom’s decline. I totally understand where you are coming from as 26 years ago my dad was over for Christmas and just as he always was and then I went to visit him shortly after his birthday mid- January and he looked like he had lost 25 pounds. He proceeded very quickly downhill from there as he was misdiagnosed with food poisoning instead of pancreatic/stomach cancer. Even so, when he was finally released from hospital after I got on his dr’s case for not having given him at least a CT, he came to live his final days in our home. It was difficult to see a once very macho, man deteriorate as he did but the last days to be there for someone in their hours of most need is priceless and your mom with you knows that. I also speak from personal experience now as my son is my primary caregiver when I need something from the store or something to eat and I’m feeling too weak after chemo to do that for myself. It’s difficult, but please treasure these moments with your mom as it is the greatest gift you can give her. I’m praying for both of you as you make this difficult part of her journey.

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@mnewland99

@lovemymom1
I’m so sorry to hear of your mom’s decline. I totally understand where you are coming from as 26 years ago my dad was over for Christmas and just as he always was and then I went to visit him shortly after his birthday mid- January and he looked like he had lost 25 pounds. He proceeded very quickly downhill from there as he was misdiagnosed with food poisoning instead of pancreatic/stomach cancer. Even so, when he was finally released from hospital after I got on his dr’s case for not having given him at least a CT, he came to live his final days in our home. It was difficult to see a once very macho, man deteriorate as he did but the last days to be there for someone in their hours of most need is priceless and your mom with you knows that. I also speak from personal experience now as my son is my primary caregiver when I need something from the store or something to eat and I’m feeling too weak after chemo to do that for myself. It’s difficult, but please treasure these moments with your mom as it is the greatest gift you can give her. I’m praying for both of you as you make this difficult part of her journey.

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Thank you for sharing your story. I am so sorry you had to go through that but I'm so happy your Dad had you. My Mom has had some good days this past week. She seems to be gaining some strength after the chemo stopped and her infection is gone. Hoping she can gain more but this disease is so fast and awful.
I am sorry you are going through chemo now, may I ask if it's pancreatic cancer too? I'm glad your son is able to be there for you and help you.
Thank you for the prayers, we need them. I will also keep you in mine. Take care

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